Disney does food allergies with the best of intentions.


So, you know how I’m always saying I’d like a push from a consumer level rather than government regulations or mandates regarding food allergies?  This is what I’m talking about:

On our first trip we asked one of the chefs why they do such a wonderful job accommodating food allergic children at Disney World, he said, “We want the repeat business.”  It would be wonderful if other resorts would take this cue from Disney and realize that if they accommodate food allergic children and their families, we will return with pleasure and continue to be loyal customers.

Check out the full article by Lisa Giuriceo on Allergy Eats, it’s honest, inspiring and gives hope.  Someday we’ll be safe.  Someday accidents won’t happen.  I just may have to save my pennies & book a Disney vacation.

Former logo of the Walt Disney World Resort, u...

Sadly, my only dream is to not go into anaphylactic shock.

It’s Food Allergy Awareness Week!


It’s Food Allergy Awareness Week again, and guess what?  Food allergies and the food-allergic are still here… and we’re still allergic.  We’re still informing you about cross-contamination and safety.

A song from Kyle Dine:

Some #FAAW tweets from my #FoodAllergy tweeps:

https://twitter.com/#!/nut_freemom/status/202064341778964481

https://twitter.com/#!/chupieandjsmama/status/202036109222477827

https://twitter.com/#!/susanweissman/status/202084480452788224

https://twitter.com/#!/allergicgirl/status/202010024929800192

https://twitter.com/#!/iknowtiffany/status/202001615715176448

https://twitter.com/#!/FoodAllergyBuzz/status/201990572003704832

https://twitter.com/#!/wegohealth/status/202073874177851393

https://twitter.com/#!/AllergicVegan/status/202112986045874176

A lot of people push for government recognition or regulation.  I look for a consumer push, and recognition from the general populace.  We can all agree that we need to convey the seriousness of cross-contamination with foods… at schools, in restaurants, at home… and everywhere.

Learn more about what you can do here:  Raising Awareness, Making an Impact

Check out my Food Allergy related posts here:  Allergies

Photo of skin test about 15 minutes after the ...

Photo of skin test about 15 minutes after the application of allergens and the scratching. (Photo credit: Wikipedia)

I hope to do the Food Allergy Walk in Pittsburgh again this year.  Perhaps I can pull together a team or get even more sponsors than last year?  Your donations were incredible last year.

Also… don’t forget, Adults can have food allergies too.  We don’t “grow out” of them.  We can’t “just pick it off” or “have just a little”.  It’s a very serious thing.

So, how are you celebrating Food Allergy Awareness Week?

I need something to put my junk in.


So, recently I’ve been thinking about getting some sort of messenger bag to keep some stuff in.  Let the jokes begin.  I know I have made fun of the vaunted murse before.  Hipsters everywhere would have admonished my belittling of their manbags.

Jim Dunlop Tortex Fin Pick 1.14mm (Purple)I just have too much stuff in my pockets.  Here’s an inventory for you right now…

I’ve also been carrying around my leather coat that’s like my own personal medicine cabinet.  It’s too hot to be carrying around a leather jacket, and the stuff is too bulky for hoodie pockets.  (It’ll be too hot to wear those soon, too.)  It usually has…

  • Daily stomach medicine
  • “Calm down if I need it” medicine

And right now some…

This is clearly getting out of hand.  I’m not sure what to do, but I need to do something.  There’s an old Dennis the Menace cartoon (or the TV show or a movie) where he empties his pockets and it’s a never-ending pile of stuff.  I feel like that, without the slingshot or overalls.

I joked with my wife one night that I needed a purse to keep all my stuff in.  Then I kept thinking that it might not be a bad idea to get a bookbag or something.  I have a nice backpack for the laptop… but I don’t have the need to carry the laptop anywhere daily.

I did take the discussion to Twitter, and gained encouragement from @allergicgirl, @VickysMama & @kyledine.

https://twitter.com/#!/kyledine/status/191867530833428481
https://twitter.com/#!/kyledine/status/190908291054977024
https://twitter.com/#!/allergicgirl/status/190866006305013760
https://twitter.com/#!/allergicgirl/status/191142565410635777

I feel like if I had a backpack, I’d be obligated to fill it with stuff.  I could fill a messenger bag with a bunch of stuff easily.  A multi-tool, an mp3 player, maybe a tablet & more pens.

I could get a small one, like Indiana Jones.  I fear I’d look more like Alan from The Hangover.  Big?  Small?  Leather?  Suede?  Canvas?  Nylon?  Patches?  No Patches?  (I could go the safety-pin, 1″ button, patch route.)  So many decisions.

Perception vs. Reality?

Perception vs. Reality?

My wife, Bethany, seems to think I won’t carry it, might lose it, or that the infatuation would quickly wear off.  Maybe she just doesn’t want  a husband that carries a purse?

I don’t see the fanny pack or those epi pen belt holders as an option.  Maybe a leg one?  And maybe a small pill box?

What do you think?

Dey Mylan’s irresponsible TV ad and its possible consequences…


Food allergy parents & patients… Brace yourself, then watch this:

Dey Pharma (Mylan) must have handed full control over to their ad company, & not approved (or even watched) the commercial.  That’s the only scenario I can possibly accept.  They certainly could not have come up with this… could they?

Is it loaded? - Food Allergy Cartoon

Is it loaded? - Food Allergy Cartoon (Another great one from Tiffany!)

They didn’t notice that it contradicts their own patient information not to mention common sense?

If they did run it knowingly, I’m going to talk to my doctor about switching brands to TwinJect unless they issue some sort of retraction or apology.

It is wholly irresponsible to convey the EpiPen as a fail safe live-saving device allowing you to disregard caution and eat foods with unknown ingredients.  To clear it up for the non-educated (and Dey Pharma/Mylan):

  • Epinephrine does not work every time.
  • Epinephrine buys you time until the ambulance can arrive or until you can get to  hospital for proper medical treatment.
  • Epinephrine is not a “cure” for knowingly eating your allergen or cross contamination.

The worst part is it’s already difficult enough to convey the severity of food allergies to people who aren’t afflicted… and to impress the very rules above in addition to why you can’t “just try a little” or how scary cross contamination can be.

This commercial is ignorant, and it spreads ignorance.

Get informed here:

Let Dey know (& let Mylan know) how upset you are!

Thanks for reading, now pass it on!  Share, tweet, post to Facebook, pin, tumblr, press, blog, +1, and do whatever you do!

EpiPens are portable epinephrine-dispensing de...

EpiPens are portable epinephrine-dispensing devices which can be used to alleviate the symptoms of severe, acute allergies. (Photo credit: Wikipedia)

Dr. James Logan: Food Allergy Mad Scientist


Ancylostoma caninum, a type of hookworm, attac...

Ancylostoma caninum, a type of hookworm, attached to the intestinal mucosa. Source:CDC's Public Health Image Library Image #5205 (Photo credit: Wikipedia)

This cat is nuts, but the good kind of nuts.  I’ve blogged about these scary possibly-food-allergy-curtailing bugs before… but this guy has sprung into action by swallowing the damn things along with a tiny camera to see just exactly how they work.  Screw animal testing and clinical trials… this dude is D.I.Y. all the way.

Check out this article: Hookworms And Allergies – Doctor Infects Himself For Experiment

Here’s an excerpt:

In using his own body in the service of science, Logan joins self-experimenters like Sir Isaac Newton, who in the 17th century nearly went blind after staring too long at the sun in a mirror in order to study the after-images on his retinas.

Quite apart from the ethical implications of putting a person’s health at risk, such self-experimentation is much less common nowadays, with trials tending to be on a much larger scale in order to get enough statistical power for reliable results, but, as in Logan’s case, it occasionally happens, under carefully controlled conditions.

Logan was interested in the experiment because research suggests, a hookworm infection can cure or alleviate symptoms of allergies like bowel disease and food allergies. It is thought the worms release compounds that reduce the over-reactions in the immune system that cause the allergies.

He allowed himself to be infected because he himself suffers from a long-standing food allergy that means he cannot eat bread without feeling very ill.

He also wanted to demonstrate, using new state of the art imaging for the first time ever, how the worms get into the body.

CRAZY.

Then again, if an herbal supplement works, why not try that first?  Maybe this guy just likes creepy little bugs so much, he wanted to eat them.  I’d rather eat herbs than bugs, but to each his own.

Then again, you or I might already be infected with a hookworm & not even know it.  The article states “According to the US Centers for Disease Control and Prevention (CDC), an estimated 576-740 million people in the world are infected with hookworm. The infection usually has no symptoms, although some people, especially those infected for the first time, have gastrointestinal symptoms.”  Ew!

There’s a video (& a transcript) about Dr. James Long here: Dr. James Logan’s Hookworm Experiment

Vodpod videos no longer available.

A video highlight, and the meat of the experiment…

Eosinophil blood cells are an important part of the body’s immune system which is the mechanism within us that fights infection. Eosinophils are associated with fighting parasites like hookworm. Normally they make about 1% of our blood. But people like Dr James who are infected with hookworms usually start producing more of these cells.

He’s going to need a lab coat an some hair like Christopher Lloyd in Back to the Future if he’s going to gain any respect as a mad scientist.  But any way you look at it, this guy is pretty badass.

No, no, no, no, no, this sucker's electrical, but I need a nuclear reaction to generate the 1.21 gigawatts of electricity I need.

No, no, no, no, no, this sucker's electrical, but I need a nuclear reaction to generate the 1.21 gigawatts of electricity I need.

The itch that wouldn’t die.


Black & White Cat Scratching EarSo last Friday or Saturday, my back started itching.  It wasn’t a bug-bite itch.  It didn’t seem like a dry skin itch.  The closest thing I could equate it to is that feeling when you get a haircut and those stray clippered hairs that they couldn’t blow away with the hair-dryer or brush away with that tickling brush jab at you until you can get home & get a proper shower.  I just assumed it was dry skin, & asked my lovely wife to hook me up with some of the plethora of lotions in the house (ask me about her Bath & Bodyworks addiction some time).  She graciously applied some non-smelly Aveeno & confirmed that there wasn’t a rash or anything.

At least, that’s what we thought.

Cat getting back scratchedThrough the week it didn’t seem to subside.  I used some Benadryl one night to go to sleep, and we switched to Eucerin and then to some weird stinky pink (and ridiculously expensive) Aveeno Oatmeal lotion.  I Googled “itch without rash” to some benign and some alarming results.  It’s never good to search for afflictions online because common symptoms of everything lead to you dying of some unheard of horrible disease.

The itch had spread to my chest eventually, by again we couldn’t see any kind of rash or hives.  My skin was obviously hydrated to the touch thanks to the lotion(s), so dry skin couldn’t be the answer.  I was starting to think it might even be nerves.  It wasn’t constant, it’s just intermittent & weird.

We figured it couldn’t be too horrible as the wife didn’t “catch” anything, so it probably wasn’t some gross fungus or bugs or anything you’d see in a sci-fi movie.

Cat trying to scratch ear through coneI finally broke down & went to Med Express on Saturday.  (I hate missing work for doctor’s appointments, and Med Express was so easy to get in & out.)  The nurse-practitioner there did see a rash under her light… called it “micro-” something “dermatitis”, & the printout they gave me says “contact dermatitis“.  She gave me a steroid to take for 5 days, & said to keep using the Eucerin.  As weird as it sounds I was relieved that it was an actual rash & not all in my head or anything.  She also recommended Claritin instead of Benadryl as it apparently has less knock-you-out type side effects.

I’m still a little itchy occasionally, but I can hopefully see an end in sight.  Hope the Prednisone works!

Cat scratching another cat's back...She said I might be allergic to something, and may have to start some detective work.  If it was laundry detergent or fabric softener, it would most likely be on my thighs too… and it’s not yet.  Plus, we’re on the end of the detergent bottle & fabric softener sheet box… I would have thought it would have affected me by now.  I did try some new generic soap, but it stunk (literally & latherally) … so I stopped using it.  I don’t think that was it.  I don’t have any new shirts that I wore that I can remember.  It’s quite maddening.  I wonder if it was something I ate or a medicine… but I’ve been on my stomach stuff for a while now, & there’s nothing new.

Fat cat can't scratch his itchy ear...Has this happened to any of my other food allergy friends or their family?  I have little to no experience with allergic rashes… other than a minor itch caused by wool… but I generally stay away from wool clothing or blankets… and my (minor) allergies to wool, cats, & dogs for some reason tend to give me sniffles not a rash.  And with shellfish, I guess there’s a rash, but the whole throat-closing thing kind of eclipses that.

Any advice on how to find the culprit?  (Especially if it should return, provided it actually does clear-up.)  Any advice on home remedies or alternate things too sooth an itch that might work better than the Eucerin & Claritin?

Many thanks in advance!

Share your food allergy story to help a student [from Allergy Eats]


Allergy Eats Logo

Share your food allergy story to help a student

I haven’t posted about food allergies in a while.  I guess nothing has “set me off”. I guess that’s a good thing, right?  This is a good share though… You can help spread Food Allergy Awareness by helping this student put together a presentation for her sociology class using your stories.

This was the initial message to Paul at Allergy Eats:

Hey Paul,

I’m doing a presentation in my sociology class about the social impact and quality of life of food allergies on children, teens, and young adults. I was wondering if you could put on the website a place where people could talk about the impact FA have on them and/or their children? I’m also looking for how it impacts the family members and close friends of the FA individual.

Thanks!

You can get more details on how to share your story here: Share your food allergy story to help a student

I’m sure that any & all help is appreciated.  Even though I’m too old f=to even qualify for “young adult” any more, I shared a link to my “background” blog post and the more recent humorous graphPlease, share your story & share this link!

Hopefully the presentation can be posted online when finished, and we can all benefit from that much more food allergy awareness.

Tipping is not a city in China


Tipping is not a city in China

Has anyone checked? Maybe it really is.

“Tipping is not a city in China” always struck me as amusing since the first time I saw it written in sharpie on a piece of paper and taped to the tip jar residing at the Misfits merchandise table in the late 90s or early 2000s.

I have seen the subject of tipping come up repeatedly lately on Facebook , in the news, and other sources (like actual conversations face-to-face with real live people).  I’ve probably even talked about it here before. Check out this snarky yet brutally honest article by a blogger (& waiter?) that I Re-Tweeted +1’d pinned shared on Facebook a few weeks ago.

Who sets the standards?  The people being tipped (tipees?)?  Their bosses?  The tippers?  Society at large?

The whole process has always confused and bewildered me (& will most likely always continue to).  I was raised thinking that for a waiter/waitress that 15% is a good tip.  For the past several years, through the magic of the internet, I have been told that 20% is a good tip.  So, 20% is the new 15%.  I’m not sure if this varies per area, or if this is all over the US.  I’m not sure if everyone agrees with this, or just your server.  I know some people that still think 10% is acceptable, and it puckers my butt-cheeks.

Things I know:

  • It’s crazy to get out the tip calculator & lave a tip to the penny.
  • In fact, don’t leave change.
  • Waitresses sometimes have to tip busboys, bartenders, and other employees.
  • A tip is expected, even for bad service… just a little one.

Things I don’t know:

  • Say I’m at Bob Evans and I don’t have any cash on me… I tip with the card.  Does my waitress think I stiffed her?
  • When will they just pay waitresses & waiters what they deserve?
  • Is “keep the change” acceptable if it’s an adequate tip, or is that just a pain to figure out?

I always try to leave decent tips, simply because I don’t have a large circle of places to go where I feel comfortable.  (You know about the deathfish, right?)  I’m sure I’ll be back if I find a place that I like.  Why not tip well?  Hopefully I’ll be treated well the next time, & the next time, & the next time..

Here’s where it gets weird…

One waitress at a Diner could come across all of these issues:

Breakfast

Cup of Coffee

Lunch Special

Casual Dinner

Meal Total

$17.95

$1.95

$6.50

$28.40

# of People

2

1

1

2

Table Trips

6

6

3

3

Refills

2

5

0

1

Hours There

1

½

1

20% Tip

$3.59

39₵

$1.30

$5.68

So, in all of these situations, is 20% rule appropriate?  Is it the “no less than $5” rule?  Is there a “no less than $5” rule? Do you get $6 for dinner because of the price of the meal, despite less trips than say a breakfast where you get tons of cheap sides?  What do you tip when you drank a butt-load of coffee?

I used to work night shift on an assembly line at Sony & a bunch of us would hang out at Eat ‘n Park in New Stanton with the late-night UPS employees.  I know I’d always get free stuff… bowls of soup, drinks, grilled stickies…  But I always tipped to include for the amount for that item.  We were hanging out for endless hours, and tables weren’t turning over, so it was only appropriate.

What about a trip to Sonic?

  The Carhop

The Drive Thru

Takes your order:

☒ No

☑ Yes

Reads It back:

? Sometimes

☑ Yes

Takes Your money:

? Sometimes

☑ Yes

Walks (or skates) out of the building:

☑ Yes

☒ No

Hands it to you:

☑ Yes

☑ Yes

You tip the carhop, but probably don’t tip at the drive through… the only real thing that they do differently is exit the building.  For that they get a tip?  (OK, rollerskating carhops deserve a mad tip.)  Why doesn’t the drive-through person get a tip?

How & what do you generally tip?  Do you have any personal guidelines?  What were you taught?  Percentage or straight dollar amount?  Always?  Never?  On Holidays?  Who taught you?

  • The pizza guy (or girl) (…or other food delivery.)
  • Haircut / Wash
  • Car-wash (Magic ash type drying people, and/or fundraiser.)
  • Six Pack Shop / Beer Distributor
  • Doorman
  • Cab / Limo driver
  • Person who takes your bags at the airport
  • Bellhop
  • Furniture delivery
  • Mailman / UPS / FedEx
  • Movers
  • Garbage man
  • Coffee shop or ice cream parlor with a tip jar
  • Touring band’s merchandise table
  • Any sandwich shop, deli, or pizza place where you “eat in” that has a tip jar.
  • Gas station attendant?
  • A masseuse?
  • Anyone I forgot?

If there’s a jar asking for tips…

  • Are you more or less likely to tip?
  • What if it’s funny?
  • What if it’s begging?
  • What if it’s “whiny” or demanding?

I just really find the subject interesting & I’d like to get a discussion going in the comments here.  GO!

(I fully expect my friend Laurel to rant here in the comments, please don’t let her do it alone!  Let’s engage in intelligent discussion.)

TIP JAR

Qdoba, I ❤ YOU.


This is why Qdoba is awesome. I’m just sayin’.

Instead of annoying the fish and shellfish-allergic masses* by adding deathfish to your menu where it wasn’t previously… they have decided to focus on selling something that they already have on the menu that also will not send you to eternal damnation.

I get the not eating meat thing, and giving things up… and it’s cool that you observe that and don’t cave in the face of rumors that the whole thing was set up by a corrupt pope taking money from fishermen in exchange for boosting their sales.

Let’s make Lent about reflection through sacrifice… not about where you can get a good deal on anaphylaxis-enducing sea bugs.

This was in my inbox today…

From: Qdoba Mexican Grill
To: me@my.email.address
Sent: Wednesday, February 22, 2012
Subject: Ash Wednesday and Friday Lenten Special-$1 Off Vegetarian Entrees

Qdoba Pittsburgh | Ash Wednesday and Friday Lenten Special - $1 Off Vegetarian Entrees

Qdoba Pittsburgh | Ash Wednesday and Friday Lenten Special - $1 Off Vegetarian Entrees

*me, and about 2 other people that I have found on the internet with a fish and/or shellfish allergy.

https://twitter.com/#!/AiXeLsyD13/status/172322010217717761

https://twitter.com/#!/QdobaMexGrill/status/172347402991308800

Sheetz “gets it” with my aversion to deathfish. ☺


I hate Lent.  So, did you see my email to Sheetz about having Deathfish now?  I hate Lent.  They wrote back.  I still hate Lent.  I do still like Sheetz though.

Lent sucks. 

https://twitter.com/#!/AiXeLsyD13/status/170619482715340800

But Sheetz is cool:

From: Ashley Sheetz
To: Eric <me@my.emailaddress>
Sent: Friday, February 17, 2012
Subject: RE: The New Shrimp Sub?

Hi Eric,

 I’m very sorry for the delay in getting back to you. I hope you find this information helpful. Let me start off by saying, we do everything in our power to ensure a pleasant visit for all of our customers. This includes keeping strict guidelines which include, but are not limited to, designating one fryer vat only for shrimp in order to help minimize the possibility of cross-contamination. Employees handling food are instructed to change gloves and wipe down the frying area after seafood orders are fulfilled.

 If your condition is life threatening, it may be in your best interest to avoid our M•T•O® products in the event that residue from the shrimp may come in contact with those food items considered safe. Our M•T•GO!® products are pre-made, individually packaged and manufactured under strict allergen monitoring programs; therefore, they would be a better choice for someone with severe reactions to certain allergens.  All allergens in our M•T•GO!® products are identified directly on the packaging label.

 Please keep in mind that our seafood menu is a limited time offer that we make available to our customers during Lent. Shrimp and fish items will only be served in our stores until the 25th of April. I apologize again for any inconvenience.

 Sincerely,
Ashley Sheetz

At least they “get it”.  I’d love to know if employees are told why they’re to use gloves & separate fryers or they’re just told to.  Not that I doubt the company’s convictions… just that I’ve been trained on things in the past where people have obviously had no idea or understanding of what they’re doing… they just know what they were told to do.

I wrote back…

From: Eric <me@my.email.address>
To: Ashley Sheetz
Sent: Monday, February 20, 2012
Subject: Re: The New Shrimp Sub?

Hi Ashley,

No problem on the response time.  I really appreciate that you took the time to reply at all, and love the honesty & frankness with which you’ve answered my questions.  The instructions to use gloves & wipe down food prep areas are great to hear for people like me.  There are a bunch of us out here… I just happen to be one of the more vocal & inquisitive ones.  More restaurants are recognizing that food allergies are on the rise.  Peanut & wheat allergies are hitting the news more… but there are more of us out here with special dietary needs.  It’s easy to understand not being able to eat something, but the gravity of eating that thing is sometimes lost… and cross contamination seems to be the thing that’s hardest to convey.  I’m sure you can imagine it’s difficult to place your trust (& potentially your life) into someone else’s hands.

I’m glad that Sheetz has an understanding of allergens!  It’s good to hear that the procedures are in place to minimize cross-contamination.  Hopefully the gravity of the situation is passed along in training.  Do a Google image search for Anaphylactic shock some time.  It’s not a pretty sight.

I hope the meatball sliders are still available after April 25th!  Ha ha.  I haven’t tried them yet, but they look AWESOME.  Perhaps I’ll stick to the M•T•GO!® products for now.  I do really enjoy the pre-made turkey sandwiches.

I see more & more Sheetz popping up…  you guys ought to build in Bridgeville… it’s right off on Rte. 79, and you can put a hurting on the local Get·Go.

Thanks again for your time, & answers!

-Eric
.seitilibasid gninrael fo nuf ekam ot ynnuf ton yllaer s’tI

Then I wrote back again…

From: Eric <me@my.email.address.>
To: Ashley Sheetz
Sent: Monday, February 20, 2012
Subject: Re: The New Shrimp Sub?

Hello Again Ashley,

Sorry for the barrage of emails…  I just had one more suggestion.  Perhaps on the signage promoting any fish/shellfish items next year during Lent (if/when they should happen to return), you could make a note of the separate fryers, and to maybe ask a manager or person in the kitchen about your allergies?  Better yet, a button on the touchpanel alerting the staff to your allergy & having it print on your order/receipt would be stellar.  It would prove you guys to be innovators when it comes to dealing with food allergies!  Acknowledging that there’s an issue goes such a long way with us food allergy folks.

Rock on!
-Eric

.seitilibasid gninrael fo nuf ekam ot ynnuf ton yllaer s’tI

Hope I’m not too annoying.  Now I’m hungry for Sheetz.

English: Interior of a Super Sheetz in Altoona...

SHEETZ!