Category Archives: Allergies

Separate is indeed not equal! Food allergies & bullying. |-o-|

Posted on by Standard 33

I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber

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Ask Your Senator to Support the School Access to Emergency Epinephrine Act

Posted on by Standard 4

Got this email from FAAN, thought I’d share.  This is your call to action:

From: Food Allergy & Anaphylaxis Network (FAAN)
To: <me>
Sent: Thursday, November 17, 2011 3:40 PM
Subject: Ask Your Senator to Support the School Access to Emergency Epinephrine Act

The Food Allergy & Anaphylaxis Network (FAAN)

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Dear Eric,The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

Today this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Adkins, Maria, and Sen. Kirk 2Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

Sincerely,
The Food Allergy & Anaphylaxis Network

 

FAAN (The Food Allergy & Anaphylaxis Network)
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11781 Lee Jackson Highway, Suite 160 | Fairfax, VA 22033-3309
(800) 929-4040 | faan
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Here’s that sample letter:

MODEL Letter of Support for the School Access to Emergency Epinephrine Act

Note:  Please paraphrase.  It is important that Senators do not receive duplicates of the same letter from different individuals. You can look up your local senators at www.senate.gov.

 

The Honorable (insert Senator’s name)

United States Senate

Washington, DC  20510

Dear Senator (insert name):

I am writing to ask you to co-sponsor S. 1884, the School Access to Emergency Epinephrine Act, introduced by Senators Dick Durbin and Mark Kirk. I am the parent of a child with severe food allergies.  (Personalize here by inserting a brief description of your child’s allergies.)

Children with food allergies are at risk for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. The Durbin-Kirk bill would encourage states to ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6 million American children have potentially life-threatening food allergies. Schools need to be prepared to treat allergic reactions in the event a student’s personal epinephrine auto-injector isn’t available or the student is having a reaction for the first time.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy & Anaphylaxis Network, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

I hope you will co-sponsor the Durbin-Kirk bill and work to assure passage of this legislation. Thank you for considering my views.

Sincerely,

Now, get to work!

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Epi Pen Bill! (The School Access to Emergency Epinephrine Act)

Posted on by Standard 6

I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

IMGP3289

Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

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Possible Parasitic Panacea

Posted on by Standard 3

Adult Trichuris female human whipworm PHIL 414...

Adult Trichuris female human whipworm

Thanks to one of my many Twitter food allergy friends,  @Onespot_Allergy, this incredible  yet possibly repulsing story recently came to my attention: Food Allergies And The Dirty Side Of The Hygiene Hypothesis

Basically… researchers are trying to see if parasites dropped into your guts will boost your immune system and possibly cure peanut allergies… and in turn, all food allergies.

This linked to another exciting, informative, and insane article from WCVB TV-5 complete with a video: Parasites May Cure Allergies

…Participants would swallow a small vial full of liquid with parasitic eggs once every two weeks for an undetermined period of time.

They said side effects are minimal.

“This is not a parasite that will stay and colonize,” said Castells. “They just stay there for a little bit, they have enough food for a few days, a few weeks, and they go out.”

Jouvin and Castells are particularly interested in finding study subjects with moderately serious peanut allergies. Often deadly, peanut allergies afflict millions and kill as many as 100 Americans each year.

First reaction?  Ew!  Next reaction?  Neat!  …and what the hell is a Whipworm?  Well, Wikipedia is helpful in such situations…

  • Light infestations (<100 worms) are frequently asymptomatic.
  • Heavy infestations may have bloody diarrhea.
  • Long-standing blood loss may lead to iron-deficiency anemia.
  • Rectal prolapse is possible in severe cases.
  • Vitamin A deficiency may also result due to infection.[2]

Mechanical damage to the mucosa may occur as well as toxic or inflammatory damage to the intestines of the host.

At least the first line is reassuring.  This seems a lot like how the plot to Alien started.  If it’s proven, I’ll go for it.  I’d like to make sure that I’m not allergic to Whipworms before I eat any or their eggs, though.

Also… if “cured”, I wouldn’t be going to Red Lobster any time soon, but it sure would make cross-contamination fears a thing of the past.

What do you think about this possible cure for food allergies?  Excited?  Scared?  Grossed out?  Curious?  No emotions until there are solid results?

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Pittsburgh’s Food Allergy Walk 2011 Recap

Posted on by Standard 14

4th out of the 5 top individual earners!

4th out of the 5 top individual earners!

So, we had a great time on Sunday at the Pittsburgh Food Allergy Walk!  I was honored to receive a certificate for being a top individual fundraiser, and glad I could help.  I was also asked to perhaps take part in getting the word out next year, and maybe be in on some of the planning.  My online chatter was picked up by this year’s volunteer chair Uwe Winzen, as well as the founder of EpiMoms (I’m a terrible person, I forgot her name already).  How cool is that?

(I say next year, we get the 501st Legion out there!  –  Looks like they appeared at some other cities’ food allergy walks!)

Campaign Progress | Goal: $50,000.00 Achieved: $39,333.05

Campaign Progress - Goal: $50,000.00 Achieved: $39,333.05

As of right now, the site states that we raised $39,333.05 toward the $50k goal.  I head a number in the $40 range on Sunday, but perhaps they’re still tallying cash & check donations made the day of the walk.  With online & offline donations, I raised $560.55 and Bethany raised $106.85… so we raised a total of $667.40.  We quite literally could not have done it without the support of our friends & family.

I did notice that I was in the minority… all the walkers received a ribbon: Blue for people with food allergies, green for friends & family supporters.  I didn’t see too many people my age or older with blue ribbons.  It seemed to be a core of families who had small children & young teens with food allergies.

Kyle Dine

Kyle Dine

It was fun to finally meet & see a performance from Kyle Dine after talking via Twitter & Facebook.  After all, we do represent the #FoodAllergyDudeArmy.  Kyle does great work educating kids on what to do regarding not taking food from just anyone, getting an adult to read labels, and speaking out right away about reactions…  as well as letting them know they’re not alone.  I also got to personally thank local celebrity Sally Wiggin for her generous donation!  She called me a sweetheart. ❤

I have some photos up on Facebook, and hope to send them to FAAN so they can be placed in their Flickr photostream.  Hopefully others will comment on the day’s events at the Pittsburgh Food Allergy Walk Facebook Page.

Got a nice little video thank-you from FAAN too:

Smiley Cookie

Smiley Cookie

One of the coolest things I took away from the day was talking to Chef Regis Holden from Eat ‘n Park about their food allergy policies & procedures.  He told us how he worked with Bill Moore, their Director of Safety and Security, to develop practices from marking the order, to looking up all of the ingredients with possible cross-contaminants, to this awesome little purple kit with a sterile sanitary contaminant-free cutting board, knife, tongs, and other tools.  Chef Holden also spoke of yearly allergen training video refreshers, and of how he had just recently heard good things about the Eat ‘n Park on Banksville Road which is nearby.  I may just have to go see for myself, and blog about their process and my adventure!

Thanks again to everyone who gave us donations, and to the walk organizers.  I think we did some good work for FAAN!

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Crazy weekend.

Posted on by Standard 4

It’s been a great weekend, thanks to Batman Movie Night on Saturday, & the Food Allergy Walk today.  I hope to eventually blog about both… but I’m kind of up for just some relaxation tonight.  I just wanted to say right now that I have an awesome wife, fantastic friends, & a great family.  Thanks for helping me have fun whirlwind of a weekend!

Thanks to everyone who donated for the walk today… I’ll be shipping the special edition Ernie and the Berts King Krab Orange T-shirts from Erin “Ernie” Payne this week for those who qualify!

Anyone have a car jack I can borrow?  I think the thermostat needs replaced on my Subaru… looks easy enough to do, if I can get to it.  The car stayed at work over the weekend.

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Thanks to everyone who donated for the Food Allergy Walk!

Posted on by Standard 5

Thanks to everyone who donated to me for the Food Allergy Walk on Sunday. The Food Allergy & Anaphylaxis Network appreciates your donation, as do I!  I have smashed my original $300 goal, and now exceeded my current $500 goal.  I couldn’t have done it without the awesome support from friends & family!

If you were thinking of donating, but hadn’t yet… I’d like to still smash that goal, or you can donate to the lovely Bethany and help her reach her goal!

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Subway still sucks, so does IHOP, take your allergy-sniffing dog there with you…

Posted on by Standard 1

Some good food allergy articles popping up lately, if you’re paying attention:

  • Allergies in the classroom: What’s OK to send in for snack time?  –  Some good tips.  Not sure if I’m 100% on-board with banning stuff in schools & classrooms.  I’d just promote safety a little more.
  • Subway expanding gluten-free test – Subway is still clueless.  They’re pushing the gluten free fad as far as they can with as little effort as possible, all while making a big deal about it & ignoring that other allergens exist.  (Read the comments.)
  • IHOP flops – IHOP owed by the same company that owns Crapplebees, also could not give a crap about your food allergies.  Try the new effortless lemon-zest dairy-free salad today! (Read the comments.)
  • $20,000 allergy-sniffing dog is a real lifesaver – Such a great idea!  Too bad it’s a $20K price tag.  I’d love to have a deathfish-detecting pooch.  I’d also train him to poop right outside of Subway restaurants.
  • Managing your food allergies in dining halls and dorm rooms – It’s back to school time.  Solid advice from a real expert.  I’m all about the buddy system.  Friends that look out for your best interest as far as not dying are friends for life.

So yeah, stuff’s happening.  I’m really just posting this to say… we’re out there.

Still taking donations for the Food Allergy Walk

Posted on by Standard 6

90% towards my goal of $500!

90% towards my goal of $500!

That’s right, Bethany & I are still taking donations for the Food Allergy Walk in  Pittsburgh.  It’s happening this Sunday, Sept. 18th at 11:00 am.  You can make a secure online tax-deductible donation for either of us, to help us meet our prospective goals, or you can hook us up with a check made out to FAAN.

Support me!
Support me!

Just click the blue “Support Me” button under each of our photos on our respective profiles to donate!

You can read my older posts about the walk for more info:

If you’re following the “Celebrity Endorsement” thing, Andrew Stockey did eventually contact me & agree to help get the word out on WTAE.com.  I still haven’t’ seen anything there yet.

Interestingly, Qdoba & Chick-fil-A also said they’d donate something, yet they haven’t online yet anyway.  I’m going to have to remind them.

You can also read all of my Food Allergy related posts if interested in learning more about food allergies form an outspoken crazy blogger.

More from the Food Allergy Walk Facebook Page…

The Walk in Pittsburgh will feature lots activities, such as: face painting, balloon artist, trackless train, mad science and inflatables. We will have a musical performance by Kyle Dine and be joined by Pittsburgh Panthers mascot ROC.

We look forward to once again welcoming Sally Wiggin and Stephen Cropper. Following the Walk, will be Q&A session with allergists from AGH and UPMC who have volunteered their time. Rep. Matt Smith will join us to share information about the new EpiPen laws in PA.

You can get one of these limited edition T-shirts for donating $50 or more, thanks to Erin “Ernie” Payne:

King Krab Orange Ernie and the Berts T-Shirt
Special Edition King Krab Orange Ernie and the Berts T-Shirt
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s,pןɐuopɔɯ ʇou ɯɐ ı

Posted on by Standard 16

I wrote one last email to Harmony & her husband to try & clear things up.  I haven’t had a response yet, but I’m really doubting I’ll get one.  What do you think?

From: Waldo Lunar <world.and.lunar.domination@gmail.com>
Date: Fri, Sep 9, 2011
Subject: Re: AiXeLsyD13 / W(aL)D – I’m not McDonald’s
To: “krebs955@gmail.com” <krebs955@gmail.com>
Cc: shovelman11@yahoo.com, pastorskid_tiwtc4u@yahoo.com, pit.05834@us.stores.mcd.com, Ella.Jones@us.mcd.com, info@westliberty.mcdtoday.com, sandra.jaeger@gmail.com, rick.sapko@us.mcd.com

Hello Harmony & Harmony’s Husband,

I’m going to try this one more time…  I am ERiC AiXeLsyD.  I write a goofy blog.  You didn’t email me.  My email address is world.and.lunar.domination@gmail.com (please see the “From” field of this email for reference).  It doesn’t say “world.and.lunar.domination@gmail.com” on the top (or bottom) of a McDonald’s receipt.  You almost had me on this.  I actually had to go to this McDonald’s to check, because I really did believe that “The reason [you] posted on [my] blog is because it was on the bottom of our receipt” as stated in your last email.

Obtaining the receipt was actually quite a harrowing experience, but I survived.  Thank you for your concern.  Please, see the scanned images at the links below (also attached) if you don’t believe me:

As you can see, it also does not say https://aixelsyd13.wordpress.com at the top (or bottom) of the receipt, which is my blog’s URL.  It also does not list my email address as noted above.

It does list Rick Sapko as a manager (not me), and give the email address ella.jones@us.mcd.com (also not me).  I’m just trying to let you know that if you were trying to contact ella.jones@us.mcd.com, you have unfortunately been unsuccessful in doing so.

You contacted me by using the form located at https://aixelsyd13.wordpress.com/contact/ (also a url, not an email address).  I know this because WordPress is quite an ingenious blogging platform, and emails that come to me through that web form have the subject line “W(aL)D Feedback”.  You may also remember filling out fields that you don’t normally have in an email client, like “Message / Comment” and “How’d you find my blog?”

What I believe has happened is that you searched Google or Bing for “ella.jones@us.mcd.com” instead of entering it into an email client.  This landed you at my blog.  I’ve tried it with both.  A search for her email address does indeed point you to my blog.  From there, you somehow found your way to the contact page… and we know the rest.  I’m just trying to help.

I see you have a Gmail address.  Being that it’s an email address you were trying to use and the weird set of circumstances, I’m assuming you found my blog with your Android phone.  Put the phone down.  I’d suggest finding a computer, and going to http://mail.google.com, logging in, clicking the “Compose Mail” button, and pasting “ella.jones@us.mcd.com” into the “To:” field.  Then, you may type away in the big blank box, and click “Send” when you’re done.

That is how you email Ms. Jones (and not me) regarding the insanity that abounds at the West Liberty Avenue McDonald’s.  I have to warn you though, she doesn’t really reply to emails.  At least not my emails, anyway.  I hope this helps.  I’m just trying to facilitate the expression of dissatisfaction with this Bermuda Triangle of fast food service.

I do, however, encourage your comments on my blog… as long as they’re directed to me, and not at McDonald’s.  I don’t mind the ones aimed at McDonald’s, but they fall on deaf ears.  I don’t think anyone at McDonald’s reads or cares about my blog.  If you would like to complain about McDonald’s to other people that aren’t McDonald’s, check out McSucks.com and McDonaldsSucks.com some time.  I would also encourage a review on UrbanSpoon.

Harmony’s Husband… I speak this as a consumer.  Please, please, please…  take pride in your work, and convince others around you to do the same.  Encourage burgers built with pickles in the middle, an amount of reconstituted onions that does not resemble a White Castle burger, and ketchup only on the inside of the bun… not the outside.  Encourage the politeness of the people working the cash register.  Encourage those taking orders to not do things like this…

McEmpoyee:  May I take your order?  (In some areas closer to downtown, this greeting is reduced to a wordless look, implying “What?”)
Me:  Hi.  I’d like two Crispy BBQ snack wraps, a lar…
McEmployee:  [Interrupting] Crispy or Grilled?
Me:  Um…  Crispy.
McEmployee:  Do you want Ranch or Honey Mustard?
Me:  Uh..  BBQ?
McEmployee:  OK.  Your total is…
Me:  [My turn to interrupt…]  Can I also get a large fry and a Sweet Tea?
McEmployee:  [Usually rolls eyes and.or sighs about here…]  What size fries?
Me:  Large please.
McEmployee:  You want a drink?
Me:  Yes.  Large Sweet Tea?  (If I say a size, I’m usually told there is only one size.  If I don’t say a size, I’ll be asked what size.)
McEmployee:  For here or to go?
Me:  To go, please.
Mc Employee:  [Sets tray on counter.]  Slide your card.  (Maybe the total is read here.)
[Food comes, & McEmployee, McFry-Technician, or McManager sets it on tray.]
Me:  Sorry, can I get that to go?
McEmployee:  [Looks at receipt.  It’s a 50/50 on whether it notes dine in or to go.  Puts food in bag.]  Here.
Me:  Thanks!

This has happened to me on more than one occasion at more than one location.  I hope you work at a competent location, like the one in Canonsburg.

Good luck getting through to Ms. Jones.  I haven’t been very successful in that matter.  I have four email addresses associated with the west liberty McDonald’s location.  You may want to try each of them…

Good luck on your quest, I hope this has finally expressed my point in an understandable manner.  A quick recap: My email address & blog URL are indeed not on a McDonald’s receipt.  You didn’t email me, you used the contact form on my blog.  I am not McDonald’s.  You didn’t email the address listed at the top of a McDonald’s receipt.  You used the contact form on my blog.

Do you want the combo, or just the sandwich?
-ERiC AiXeLsyD
World (and Lunar) Domination

McReceipt 09/07/2011

I don't see my email address or blog url on here anywhere. Do you?

Trust me, I am not McDonald's.

Trust me, I am not McDonald's.

s,pןɐuopɔɯ ʇou ɯɐ ı | Just in case you’re lost…  This is the latest in this round of chaos that involved people contacting me, apparently thinking that I’m McDonald’s.  I think they’ll all pop up in the “related articles” section below.

I’m guessing the four McEmail addresses listed above have a block on my world.and.lunar.domination email address., and I’m guessing Harmony, her husband, Shirley, and Amber are done with this.  I am too, until the next person emails me thinking that I am indeed McDonald’s.

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