Ask Your Senator to Support the School Access to Emergency Epinephrine Act


Got this email from FAAN, thought I’d share.  This is your call to action:

From: Food Allergy & Anaphylaxis Network (FAAN)
To: <me>
Sent: Thursday, November 17, 2011 3:40 PM
Subject: Ask Your Senator to Support the School Access to Emergency Epinephrine Act

The Food Allergy & Anaphylaxis Network (FAAN)

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Dear Eric,The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

Today this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Adkins, Maria, and Sen. Kirk 2Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

Sincerely,
The Food Allergy & Anaphylaxis Network

 


FAAN (The Food Allergy & Anaphylaxis Network)

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Here’s that sample letter:

MODEL Letter of Support for the School Access to Emergency Epinephrine Act

Note:  Please paraphrase.  It is important that Senators do not receive duplicates of the same letter from different individuals. You can look up your local senators at www.senate.gov.

 

The Honorable (insert Senator’s name)

United States Senate

Washington, DC  20510

Dear Senator (insert name):

I am writing to ask you to co-sponsor S. 1884, the School Access to Emergency Epinephrine Act, introduced by Senators Dick Durbin and Mark Kirk. I am the parent of a child with severe food allergies.  (Personalize here by inserting a brief description of your child’s allergies.)

Children with food allergies are at risk for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. The Durbin-Kirk bill would encourage states to ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6 million American children have potentially life-threatening food allergies. Schools need to be prepared to treat allergic reactions in the event a student’s personal epinephrine auto-injector isn’t available or the student is having a reaction for the first time.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy & Anaphylaxis Network, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

I hope you will co-sponsor the Durbin-Kirk bill and work to assure passage of this legislation. Thank you for considering my views.

Sincerely,

Now, get to work!

Commonwealth Press & a bunch of other South Side businesses need your support.


Support local small business owners, get some Christmas shopping done this weekend at Commonwealth Press, and help fight a senseless boycott.  Get $5 off in exchange for a stupid mailer, or a receipt from one of the listed local businesses…

common wealth press is literally a mom and pop shop.

common wealth press is literally a mom and pop shop.

Dan is good people. Commonwealth makes a great product.  (Like both rounds of Ernie and the Berts T-shirts!)  Check out the political side of things at the bottom of this page.  Don’t uselessly rail against any of these businesses, especially if you don’t understand the policies in question.

Epi Pen Bill! (The School Access to Emergency Epinephrine Act)


I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

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Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

Still taking donations for the Food Allergy Walk


90% towards my goal of $500!

90% towards my goal of $500!

That’s right, Bethany & I are still taking donations for the Food Allergy Walk in  Pittsburgh.  It’s happening this Sunday, Sept. 18th at 11:00 am.  You can make a secure online tax-deductible donation for either of us, to help us meet our prospective goals, or you can hook us up with a check made out to FAAN.

Support me!
Support me!

Just click the blue “Support Me” button under each of our photos on our respective profiles to donate!

You can read my older posts about the walk for more info:

If you’re following the “Celebrity Endorsement” thing, Andrew Stockey did eventually contact me & agree to help get the word out on WTAE.com.  I still haven’t’ seen anything there yet.

Interestingly, Qdoba & Chick-fil-A also said they’d donate something, yet they haven’t online yet anyway.  I’m going to have to remind them.

You can also read all of my Food Allergy related posts if interested in learning more about food allergies form an outspoken crazy blogger.

More from the Food Allergy Walk Facebook Page

The Walk in Pittsburgh will feature lots activities, such as: face painting, balloon artist, trackless train, mad science and inflatables. We will have a musical performance by Kyle Dine and be joined by Pittsburgh Panthers mascot ROC.

We look forward to once again welcoming Sally Wiggin and Stephen Cropper. Following the Walk, will be Q&A session with allergists from AGH and UPMC who have volunteered their time. Rep. Matt Smith will join us to share information about the new EpiPen laws in PA.

You can get one of these limited edition T-shirts for donating $50 or more, thanks to Erin “Ernie” Payne:

King Krab Orange Ernie and the Berts T-Shirt
Special Edition King Krab Orange Ernie and the Berts T-Shirt

Message from FAI and Research America – Food allergy action required!


From: Food Allergy Initiative <info@faiusa.org>
To: Me <me@my.email.address>
Sent: Tuesday, July 19, 2011 12:30 PM
Subject: Message from FAI & Research America

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Finding a cure for life-threatening food allergies. July 19, 2011
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Write Your Congressman Today!
girl with flag
Fight for the Future of Medical Research!
Dear Friend,FAI has joined forces with Research!America, the nation’s largest nonprofit advocacy alliance committed to making health research a higher national priority. We’re fighting for strong, continuing support for life-saving research at the NIH.
Please join us today by writing your elected officials. You’ll find two letters on our site. The first allows you to voice your support for food allergy research, and the second, provided by Research America, allows you to voice your opposition to budget cuts at NIH.
A strong government-private partnership is the key to finding a cure for food allergies. We’ve worked too hard and come too far to fail now. As the world’s largest source of private funding for food allergy research, FAI urges you to write your elected officials today. Millons of Americans–including 12 million food allergy sufferers–are counting on us.
Sincerely,
Mary Jane Marchisotto
Executive Director, FAI
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Our Mission

FAI supports research to find a cure for life-threatening food allergies; clinical activities to improve diagnosis and treatment; public policy to increase federal funding for research and create safer environments for those afflicted; and educational programs to make the hospitality industry, schools, day care centers, and camps safer.

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Food Allergy Initiative 515 Madison Avenue, Suite 1912 | New York, NY 10022-5403
Phone: 855-FAI-9604 | Fax: 917-338-5130 | info
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Copyright © 2011 Food Allergy Initiative. All Rights Reserved.

From FAI :: “Give It Up!” for Food Allergy Awareness Week!


From the FAI

—– Forwarded Message —–
From: Food Allergy Initiative <info@faiusa.org>
To: [-mE.]
Sent: Monday, May 9, 2011 4:26 PM
Subject: Fw: FAAW – FAI’s Give It Up Campaign & Poster Contest

Food Allergy Initiative
Food Allergy Awareness Week — May 8 thru 15, 2011

“Give It Up!” for Food Allergy Awareness Week

Food Allergy Awareness Week is here! Join FAI’s 2011 “Give It Up” advocacy campaign and show your support for the 12 million Americans with food allergies—including some 3 million children. Here’s how it works:

  • Show your support by giving up a favorite food for the week, a day, or just one meal.
  • Write your elected officials, urging them to increase federal funding for research that will lead to a cure. (If you wish, you can add your story to the letters we’ve prepared for you.) The federal government only spends about $28 million a year on food allergy research—far less than on other important diseases. It’s time to solve this major public health problem!
  • Enter our poster contest! Enter on your own, or have family and friends join in the fun. You could win a Divvies gift certificate!
Since 2007, Food Allergy Awareness Week has put the spotlight on life-threatening food allergies. FAI and other concerned organizations will be conducting activities throughout the week.

JOIN THE CAMPAIGN TODAY AND MAKE A DIFFERENCE!

Please help us get the word out! Share this e-mail—and be sure to take a look at these news stories:
  • NBC Nightly News and MSNBC ran a compelling three-part story on the impact of food allergies on children, which cites results from an upcoming FAI-sponsored study and features interviews with 6-year-old Lily Martin and 15-year-old Morgan Smith—Colorado students with life-threatening food allergies.
  • Read a statement from the National Institute of Allergy and Infectious Diseases—the agency responsible for most federally funded food allergy research.

Our Mission

FAI supports research to find a cure for life-threatening food allergies; clinical activities to improve diagnosis and treatment; public policy to increase federal funding for research and create safer environments for those afflicted; and educational programs to make the hospitality industry, schools, day care centers, and camps safer.
Food Allergy Initiative
515 Madison Avenue, Suite 1912 | New York, NY 10022-5403
Phone: 855-FAI-9604 | Fax: 917-338-5130 | info@faiusa.org
Privacy Policy | Email Preferences
Copyright © 2011 Food Allergy Initiative. All Rights Reserved.

That’s right, it’s FOOD ALLERGY AWARENESS WEEK!

Ridiculous Amount of Food Allergy Crap This Week


This week blew up on Twitter as far as food allergies.  So much went by that I wanted to promote, comment on, blog about, or whatever… but I didn’t get to any of it.  Oh well.  There are others out there… writing, educating, & commenting.  So… if you’re interested & you can keep up, here’s a run-down of stuff that you need to see:

First off, the ridiculousness with food allergy protesters in Edgewater, FL:

And, then, all the rest…

  • NY PIX 11 | FOOD ALLERGY WEEKIt was Food Allergy Awareness Week for WPIX TV 11 in New York. Awesome.  There’s a plethora of incredible content available here: NY PIX 11 | Food Allergy Week – I still haven’t made my way through all of it.  Looks like they’re covering all the angles though… form safety at restaurants and schools, to personal profiles, to cooking, to businesses helping out with allergy needs, to dealing with it mentally, to research, to legislation.  I really applaud the drive & effort… and hope other news stations across the country pick up on this!
  • Allergic Girl: Adventures in Living Well with Food Allergies is out, & I finally got a copy.  Just started reading, and I hope to eventually blog a review.  Bonus: Author Sloane Miller got her own segment in the aforementioned WPIX Food Allergy Week!
  • I read this essay from Keith at the FAAN website, and was quite moved: FAAN Community | First Reaction in 14 Years.  Want to know what anaphylaxis feels like?  It’s worth reading, and shows the importance of vigilance in reading labels, education, carrying an epi pen, and staying calm.  Write to your state governor and the President with FAAN’s help, & ask them to support Food Allergy Awareness Week 2011!
  • Quiznos has a lobster sub?  Ugh.  Disgusting.  I still hate Lent.
  • The Allergy Ninja has arrived to give support to the #FoodAllergyMomArmy, and  I bet (& hope) he’s up to no good.

Am I missing something?  I feel like I’m missing something.

Oh yeah.  I need to update my links.  Have a blog that I should be linking to?  Let me know!

Twitter and my friends at Clean Water Action


So, Twitter suggested that I follow Clean Water Action.  Ha ha.

http://twitter.com/#!/AiXeLsyD13/status/43764259984904192

It reminded me of this…

Senator Wayne Fontana Reads His Mail.

…and I laughed.

I need to write some more goofy letters.

AllergyEats | Defining allergy-friendly restaurant survey results


So, a while ago I posted asking for you to help out Paul from Allergy Eats with defining “allergy-friendly” as it pertains to a restaurant.  I also took the time to post my own thoughts before I sent them on to be tabulated.

Well, now Paul has posted his summary & survey results to the still mysterious government body.  I enjoyed reading the results, so I thought I’d share:

AllergyEats | Blog Logo

AllergyEats Blog

The AllergyEats Blog | How do we define an allergy-friendly restaurant? A look at the survey results

It’s great to see the results, and I can’t wait to see where & how they’re put to use.  It’s also great that all of our comments were passed along with the report, so rest assured that your voice has been heard thanks to Paul.  Hopefully it lays groundwork for more gub’ment organizations to follow by example!  (Although, we need to push from a consumer level too.)

My take on the results… it looks like we’re all looking for everyone in the restaurant from kitchen to wait staff to managers to be trained in food allergies and cross-contamination and possibly even certified… which seems like a no-brainer.  Even if that’s all we get, it’s a great start.

Employee answering phone needs to be knowledgeable: 1

Apparently, I’m the only one who wants the person answering the phone to know what they’re talking about.  Ha ha.  I can’t tell you how many times I’ve had to define shellfish on the phone, or ask if they have any only to get there after being told no… and they totally do.  Perhaps it’s shame on me for not asking to talk to a manager…  but the person answering the phone ought to be knowledgeable enough to hand-off such questions, so I stand by my statement.

Cross contamination: (42 responses)

Understands and avoids cross-contamination:  21

Separate and cleaned prep areas and cookware:  20

Should wash hands:  1

Who said they should wash their hands?  Seriously?  I hope they’re doing that anyway… and that they don’t really need those signs in the restroom as a reminder.

Treats ALL allergies the same, not just the Big 8: 1

Apparently I’m the lone theorist there.  Really?  Well, I’m in the Top 8 category, so I guess… yo hell with the rest of you!  Ha ha.

No nuts strewn about the restaurant: 1

This one agitates me.  If it’s part of the restaurant’s shtick/ambiance/personality… then just give it up.  I like being able to walk into Five Guys and grab a tray of peanuts.  I don’t expect (or want) to dine at Long John Silvers or Red Lobster any time soon.

Specific allergen menus available in-house (not just online): 13

Allergen symbol list on menus: 12

Online food allergy menu: 4

All excellent points.  I’ve blogged about the need for menu symbols before.  Let’s get this done, people!

Ability to print out all ingredients for customer / show labels to customer if necessary: 11

Great idea.  A representative from Bob Evans once emailed me a chart detailing where everything was cooked in the kitchen & what surfaces would be safe with my shellfish allergy while they has a seasonal Shrimp stir-fry dish.  How cool is that?

At any rate, read the Blog at AllergyEats, and leave some feedback whether you participated in the original survey or not… it’s still valuable.  I’d also appreciate any comments here.  I’m sure the peanut thing will get some people riled up.  Ha ha.

 

Get a proclamation from your state governor that says “diarrhea”!


Food Allergy Awareness Week

FAAW

So, Food Allergy Awareness Week 2011 is still a little far off, but at the same time it’s quickly approaching.

Personally, I’m all about pushing it from a consumer-level rather than having some government mandates handed down to reluctant (and perhaps allergen-ignorant) business owners.

But, at the same time, I see the monumental importance of government recognition.  It spreads awareness and gives hope to those of us trying to express the validity and seriousness of food allergies and anaphylaxis.

So, I urge you to do your part, and write to the governor of your state asking for them to declare recognition of Food Allergy Awareness Week.  From the FAAN website:

Take ActionFood Allergy Awareness Week: May 8-14, 2011

Ask your Governor to Issue a Food Allergy Awareness Week Proclamation

Issuing a Food Allergy Awareness Week (FAAW) proclamation is a great way to help raise awareness in your State!

Ask your Governor to declare May 8-14, 2011 Food Allergy Awareness Week!

In 2010, FAAW was recognized in a RECORD 37 STATES! Let’s break this record in 2011!

As of Feb 8, 2011, only one proclamation has been issued (Minnesota). Only 49 more states to go!

So, what are you waiting for?  It only takes a few minutes, and you may even get a nifty official-looking document from your governor with a state seal that has the word “diarrhea” on it.  I mean, how funny is that?