Tag Archives: anaphylactic reaction

The Allergic Kid | No More Dead Children

Posted on by Standard 5

You read my post about Ammaria Johnson, right?  Well, here’s another excellent blog that you need to check out on the subject:

Why?  Because it’s important to hit this message hard, and repeat it until everyone’s sick & tired of hearing it.

A small excerpt:

Failure to give Benadryl, no Epi-pen on hand and the outrageous decision to call a parent instead of 911 when a child’s airway is closing?  I don’t even have words for this school’s heinous behavior.  What part of “life threatening medical condition” did they not understand?  These people shouldn’t be entrusted with the care of a gerbil, let alone a child’s life.

And what kind of self-serving, we’re-not-responsible-for-the-death-of-the-child-in-our-care, preparing-for-a-lawsuit garbage was the school district trying to serve up with its statement that this girl died of a “pre-existing medical condition”?  Here’s the county’s own guidelines for managing food allergies which the school failed to follow.  (Thanks to @IknowTiffany for the link.)

Couldn’t agree more.

Another Food Allergy Tragedy: Ammaria Johnson

Posted on by Standard 16

There are many posts out there already in the Food Allergy community about a tragedy involving a peanut allergy that happened only yesterday in Richmond Virginia.  I won’t rehash the details, but I would like to provide some links to articles that are worth reading:

I felt the need to post because we obviously need to reach beyond the Food Allergy community.  If you’re reading this, I ask you to reblog, repost, tweet, +1, post your thoughts about the situation, repost one or all of the above articles, tell your friends and neighbors… use social media and good old fashioned word of mouth to spread the word.

This issue is bigger than the bullying, bigger than the politics, bigger than “my kid needs his peanut butter sandwich”.

SCHOOLS NEED TO HAVE EPI-PENS ON SITE, AND NURSES, TEACHERS, STAFF MUST BE PERMITTED TO ADMINISTER THEM.

There is no longer an excuse for anything getting in the way of this.  This is not a single isolated incident kind of thing any longer.

From WTVR:

“She has an allergy action plan at the school,” said Pendleton, which authorizes the school to give her Benadryl during a reaction. “They didn’t do that,” she said.

At the beginning of this school year, the mother said she tried to give the clinical aid an Epipen for emergencies, but she was declined and told to keep it at home.

According to Chesterfield County School policy parents are supposed to provide the school medication for children with allergies.

This is unacceptable.

Write to your senator now.  Write all of your elected officials frequently.  Ask them to endorse a bill like this, or any bill that comes up on the issue.

Administering a dose of epinephrine is not a 100% guaranteed life-saver, but imagine if lifeguards in school pools were asked not to administer CPR for drowning children?  We sure as hell need to do something.

If it’s your thing, please pray for the family, the teachers, students, emergency responders, and medical staff involved.

What are you waiting for?  Read those articles, & re-post now!

EpiPens are portable epinephrine-dispensing de...

Epi-Pen

Related articles

Food Allergy News, the good kind…

Posted on by Standard 4

OK, so my last Food Allergy post was a little sad, disheartening, and rant-like.  Hopefully this one will be the Yang to the others Yin.  (Or is that Yin to the others Yang?)

I’d like to share some good news in the form of links, and a little commentary…

http://twitter.com/#!/AllergyEats/status/17239393752322048

http://twitter.com/#!/FoodAllergy/status/17567884217683969

  • FAAN | The Food Allergy & Anaphylaxis Management Act – Finally, the FAAMA bill has passed, and is expected to be signed into law.  This will hopefully prevent events like the ones surrounding Katelyn’s death from happening in the future by making sure schools are more educated on the subject, and more equipped to deal with similar situations.  Sadly, it’s a voluntary policy and not a mandatory one.

http://twitter.com/#!/AiXeLsyD13/status/17572685122895872

Food Allergy News, the Katelyn Carlson tragedy.

Posted on by Standard 18

So food allergy news seems to be all over the place the last few weeks.  There are good things happening, and there are bad things happening.  I’ll hit you with the bad news first, then we can move on to the good news with a perspective on why it’s good news & why it’s important.  (Looks like I’m so long-winded, that will need to be its own blog post.)

Sadly, Katelyn Carlson, a 13 year old girl passed away earlier this month due to an anaphylactic reaction to peanut oil or a peanut cross-contaminant in some Chinese food that was served at a school function.  Apparently parents and teachers “checked multiple times” with the restaurant to make sure there were no peanuts in the food, or peanut oil… I’m guessing there were cross-contaminants somewhere along the line.  My thoughts on the subject are summed up perfectly in a Nut-Free Mom blog post on the subject.  While I don’t want to appear as pointing the finger at anyone… this tragedy could have certainly been avoided if the parents, teachers, administrators, and/or restaurant employees were all better educated about food allergies and cross-contamination.  Unfortunately, all involved will certainly be more cautious about such issues in the future.

Mr. Yuk
Mr. Yuk

Being allergic to shellfish, Asian food is at the top of my “No!/Keep Away!/Do Not Touch!” list.  (Okay, maybe 2nd to Red Lobster, Joe’s Crab Shack, & Long John Silver’s.) Not only is shellfish a visible ingredient in Asian cuisine… crab can be in “vegetarian” egg rolls as something is lost in translation, and oysters and brine shrimp are commonly used to make a plethora of sauces.  Similarly, peanuts and peanut oil are an essential ingredient to a bunch of Chinese food.  Why would one even attempt to assume it was safe?  Obviously, it’s just not a good idea.  I have ended up becoming pretty good at making a few Chinese dishes at home that I know are safe where I can read all of the bottles.  It may not be as good as the place run by actual Chinese people a few blocks over, but it’s also not going to potentially kill me.

Obviously, this points to a need for better food allergy education across the board…

  • For Restaurants: The chefs, the owners, the waiters and waitresses, the host or hostesses… anyone who can be asked in any situation where there’s food involved needs to be educated about potential food allergy dangers ans especially about cross-contamination.  Also, they should be required to have an epi pen or two in their first aid kit, without question.
  • For manufacturers/processing plants: I call “shenanigans” on the whole labeling process that puts the CYA warnings like “This (whatever) processed in a facility that also processes peanuts, tree nuts, shellfish, wheat, and belly button lint.”  The other day I saw packaged cheese that had the shellfish warning on it.  Where, why, and how would cheese ever need to or potentially come into contact with shellfish while it’s being made or processed?  Does Admiral Ackbar run your processing plant?  Is there lobster flavored cheese every few runs?  I would push for stricter rules for these companies where such allergens do not come into contact with other foods… it requires separation and sterilization.  Also… why not a “Mr. Yuk” type system with images or icons?  Everything else has been dumbed-down to icons over the years.  Why not make it easy with a rating-system for “contains”, “possibly contains”, and “processed in the same facility” with little pictographs of the scary deadly allergens?  Let’s differentiate between “allergy” and “intolerance” while we’re at it.
  • For schools: Food allergies are obviously a real issue.  Obviously there’s a comprehension problem when it comes to safety.  School nurse’s stations and cafeterias also ought to be required to be equipped with an epi pen.  This is one area where federal laws ought to trump state laws (as much as my inner political self is against this) and require them across the board, everywhere.  Teachers and administrators ought to be required to take food allergy classes or even tests just like first aid certification… or in with first aid certification.
  • For parents: Obviously, it’s a fine line between being over-protective and ridiculously worrisome and educating your child on food allergy and cross contamination issues.  They are serious and potentially life threatening.  Medical tags/bracelets and a personal epi pen are probably a good idea.  Your child needs to be equipped with the knowledge of potential allergy triggers, aware of what can happen, and the confidence to say “no, I’m not eating that” to other kids or ignorant adults.  In with being aware of what may happen… staying calm is necessary when an allergic reaction happens.  Knowledge of what happens, how, and how to stop it and get help can greatly increase the chances of remaining calm.
  • For people with food allergies: Obviously you’re (hopefully) on guard all the time.   Stay that way.  Read up on the subject, be informed, teach others.

So, there’s my humble and seemingly grumpy opinion.  My heart goes out to the family, friends, & classmates of Katelyn, I can’t imagine the greif that they’re going through.  I hope they can take some comfort in the fact that many others can use this tragedy to become more aware of and educate others on  food allergies, cross-contamination, and perhaps even funding for research for a cure.

Aller-G’s

Posted on by Standard 1

…Saw some more cool tweets about allergies today, again from pnutfreeworld.  They all caught my eye, and put me in a slightly better mood.  I’m not allergic to peanuts, but a lot of other people out there are.  I’m allergic to shellfish, and all of us that suffer from severe allergies need to stick together… so I’ve been following allergy issues on the web more & more.  I thought I might share with the hopes that if you’re out there suffering form allergies, and you happen to stumble upon this blog… you’ll know that there’s a bunch of us out here… or if you have a friend or family member that suffers form allergies, this may offer you some insight into their world.

The first one that jumped out at me today, was this one…

Law Makes Allergies a Restaurant’s Responsibility, Too – A Massachusetts Regulation Requires Restaurants to Get Food Allergy Training

If you saw my blog the other day about the two thrilling tweets, this would be the conclusion.  Apparently it passed! I know… this is odd for me to celebrate.  Normally, I’m anti- anything that has to do with making more rules & regulations or expanding government.  But, this just hits too close for me on a personal level to not be behind it.  I just hope they go about it efficiently.

Basically, the law says that if you’re a customer, you need to speak up and inform the restaurant of your allergy, and if you’re a restaurant, it’s your responsibility to have all of your employees trained and certified on allergy safety and cross contamination issues.  I realize that this is not a fool-proof system, and that I don’t even live near Massachusetts, but it gives me hope that other states may one day follow suit.  I now have something concrete to write about to my local politicians… and say “hey, look… they’re doing something that makes sense”.

Sadly, the legislation doesn’t seem to point to chain restaurants… like Subway, where cross-contamination with the seafood sub is a major issue.  It does, however, give me hope that I will someday be able to dine in an upscale restaurant with no abnormal concern for my safety.

If you’ve read my trifecta of tirades on the food industry & cleanliness & allergy issues, (That’s 1, 2, & 3) then you know that there are others out there who think that implementing such training would not only be impractical, but it would be just not done at all or treated like a joke from all concerned parties.  I really, really hope that’s not the case once this is put into effect.  I would hope that this would be an issue that’s handled quite seriously… it is, after all, a life-or-death issue.

The second article’s title made me think, “damn right”…

Food on the road can be a minefield – Taking steps to minimize the risks from allergies

Now, this is from a Canadian publication, and they seem to have a lot more government regulation already… but I don’t really support banning things like they seem to want to do.  Education and training is what we need. This article is a nice list of websites and literature that you can look to for support in dining out while traveling abroad.

I’m going to have to look into these sites a little more, and see if there’s anything worth noting or sharing.

There are two not mentioned in the article that look promising… but they really need their databases updated if they’re going to be useful at all:  Can I Eat There? & Shellfish Free

I’m also hoping UrbanSpoon.com one day makes note of more than just gluten-allergy friendly restaurants… and picks up on the big 8.

This last one is cool on a geek front as well as an allergy front…

Peanut Allergy Blocker On The Way

The concept just blows my mind.  I’ve said before… even if I was given a cure tomorrow, I doubt I’d ever even want shellfish at this point… but at least I’d be able to eat food off of the same grill or out of the same fryer without hesitation or anaphylactic repercussions.

I’ve read a lot about the causes of allergies… and asked a lot of questions of doctors.  It’s amazing how much they don’t know… but this article is very enlightening, and it’s all broken down so it’s easy to understand:

Dr Suphioglu said that the work being done by his team also has potential benefits for all allergy sufferers. “Taking a step further back in how an allergic reaction occurs, we are also carrying out research into how we can prevent the allergen specific antibodies from being produced at all.

“In an allergic reaction, the body produces cell signalling molecules called cytokines to trigger the production of antibodies. If we can neutralise the cytokines involved with the allergic reaction, we can potentially block or reduce the production of the antibodies. In recent preliminary results we have successfully identified a substance that interacts with one of the key cytokines involved in the allergic reaction. We are now assessing the capacity of this substance to block or reduce antibody production in the allergic reaction.”

Dr Suphioglu is confident that his team’s allergy research work will result in better treatments for allergy sufferers. “I believe our research into understanding the molecular and allergenic properties of major peanut allergens together with our work on how to prevent or inhibit allergic reactions will contribute to the development of safer and more effective methods for peanut allergy diagnosis, prevention and treatment as well as benefit sufferers of other allergies.”

I’ve read a bunch of articles pertaining to the links between asthma and dust mite allergies and their relation to the severe shellfish allergies.  It’s really interesting stuff.  I hope all of these studies merge in the near future, and perhaps there will be an end to all my allergy-related rants!