Tag Archives: Epi Pen

Subway, Quiznos, Taco Bell, W.G. Grinder’s, & Sheetz take note…

Posted on by Standard 6

https://twitter.com/#!/W_a_L_D/status/169103504059797506

https://twitter.com/#!/FirehouseSubs/status/169104530632474624

https://twitter.com/#!/W_a_L_D/status/169104935043088385

Firehouse Subs, you’re awesome.  I’m just sayin’.

Other food places with no shellfish currently on the menu, pay attention here too.  You don’t need shellfish.

Places that have added it over the years, preventing me from going back…

Other places that don’t need to add it to the menu…

Got that?  Good.

Also, what ever happened to Roly Poly & Schlotzsky’s?  They were excellent shellfish-free places to dine.  Come back!  Also, we need McCalister’s Deli and Lion’s Choice to remain shellfish free and move to the ‘Burgh.  Maybe even Jack in the Box too.

To the rest of you, let’s stop these damn seafood lent specials.  Let the business go to Red Lobster, Joe’s Crab Shack, Long John Silver’s‘, VFD fish fry events, and Monterey Bay.  If you don’t normally do shellfish, stay away from it.  Please?  I ask of behalf of the seafood allergic and those who choose to eat kosher.

Firehouse Subs

Firehouse Subs - my new food heroes.

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Zero8

Posted on by Standard 4

Zero8 | Resto-Bar

Restaurant sans allergène

I’m going to need to get my passport, a long weekend, and maybe even a French/English dictionary so I can drive to Montreal and have several meals at my new ideal vacation destination: Zero8

I just learned of the wonderful existence of Zero8 thanks to the ever informative Allergy Eats Blog.  Paul at Allergy Eats is always on top of current allergy issues with restaurants (like recent fast-food menu changes), and it’s great to see that a restaurant like this even exists in the first place.  What’s their deal?

Well, they are free of the top 8 allergens, plus a few other things… and seem to be extremely sensitive to the needs of those with food allergies, food intolerances, and celiac disease.  This quote alone from their “Learn More” page is really incredibly comforting:

As everyone suffering from food allergies knows, going to the restaurant with family, friends or colleagues is not always enjoyable: limited knowledge of the ingredients used in dishes, fear of cross-contamination, lack of confidence in the staff are some of the worries that can come with ordering a simple meal!

A food allergy cannot be taken lightly. Difficulty breathing, loss of consciousness, inflammation and vomiting are some of the extreme reactions that the immune system can have when confronted with a food protein. The consequences can be dramatic. Serious allergies can cause an anaphylactic shock, a violent reaction that can cause loss of consciousness and sometimes death.

At Zero8 we offer a secure environment where you can eat with confidence. We guarantee a worry-free meal!

…And something more restaurants ought to understand, express, & practice.  Or at least this could translate to other restaurants:

Since most food allergies are caused by the 9 priority allergens, you may be allergic to other foods. That is why we identify all of the ingredients in our dishes on our menu and that the list of our kitchen’s authorized ingredients is available upon request at any time. Whenever possible, we try to accommodate our clients’ requests in adapting dishes to their particular needs.

Zero8 pays attention to your needs!

Is that too much to ask?

I have no idea why Canada seems to be light-years ahead of the United States where food allergies are concerned.  They have better legislation, tolerance for epi-pens, and awareness.

Chefs in the US need to get behind this!  If there was a place like this in Pittsburgh, you could bet I’d be there all the time and I’d tell all my friends & family about the place.  There were a ton of Pittsburghers at the Food Allergy Walk last year, you have your clientele ready!

Click the Allergy Eats Blog logo to read about Paul’s experience there!

Allergy Eats Blog

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The Science of Anaphylaxis / We Need Epi-Pens in Schools!

Posted on by Standard 1

Lots of food allergy stuff going on….

Food Allergy & Anaphylaxis Network

FAAN

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The Allergic Kid | No More Dead Children

Posted on by Standard 5

You read my post about Ammaria Johnson, right?  Well, here’s another excellent blog that you need to check out on the subject:

Why?  Because it’s important to hit this message hard, and repeat it until everyone’s sick & tired of hearing it.

A small excerpt:

Failure to give Benadryl, no Epi-pen on hand and the outrageous decision to call a parent instead of 911 when a child’s airway is closing?  I don’t even have words for this school’s heinous behavior.  What part of “life threatening medical condition” did they not understand?  These people shouldn’t be entrusted with the care of a gerbil, let alone a child’s life.

And what kind of self-serving, we’re-not-responsible-for-the-death-of-the-child-in-our-care, preparing-for-a-lawsuit garbage was the school district trying to serve up with its statement that this girl died of a “pre-existing medical condition”?  Here’s the county’s own guidelines for managing food allergies which the school failed to follow.  (Thanks to @IknowTiffany for the link.)

Couldn’t agree more.

Another Food Allergy Tragedy: Ammaria Johnson

Posted on by Standard 16

There are many posts out there already in the Food Allergy community about a tragedy involving a peanut allergy that happened only yesterday in Richmond Virginia.  I won’t rehash the details, but I would like to provide some links to articles that are worth reading:

I felt the need to post because we obviously need to reach beyond the Food Allergy community.  If you’re reading this, I ask you to reblog, repost, tweet, +1, post your thoughts about the situation, repost one or all of the above articles, tell your friends and neighbors… use social media and good old fashioned word of mouth to spread the word.

This issue is bigger than the bullying, bigger than the politics, bigger than “my kid needs his peanut butter sandwich”.

SCHOOLS NEED TO HAVE EPI-PENS ON SITE, AND NURSES, TEACHERS, STAFF MUST BE PERMITTED TO ADMINISTER THEM.

There is no longer an excuse for anything getting in the way of this.  This is not a single isolated incident kind of thing any longer.

From WTVR:

“She has an allergy action plan at the school,” said Pendleton, which authorizes the school to give her Benadryl during a reaction. “They didn’t do that,” she said.

At the beginning of this school year, the mother said she tried to give the clinical aid an Epipen for emergencies, but she was declined and told to keep it at home.

According to Chesterfield County School policy parents are supposed to provide the school medication for children with allergies.

This is unacceptable.

Write to your senator now.  Write all of your elected officials frequently.  Ask them to endorse a bill like this, or any bill that comes up on the issue.

Administering a dose of epinephrine is not a 100% guaranteed life-saver, but imagine if lifeguards in school pools were asked not to administer CPR for drowning children?  We sure as hell need to do something.

If it’s your thing, please pray for the family, the teachers, students, emergency responders, and medical staff involved.

What are you waiting for?  Read those articles, & re-post now!

EpiPens are portable epinephrine-dispensing de...

Epi-Pen

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Separate is indeed not equal! Food allergies & bullying. |-o-|

Posted on by Standard 33

I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber

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Ask Your Senator to Support the School Access to Emergency Epinephrine Act

Posted on by Standard 4

Got this email from FAAN, thought I’d share.  This is your call to action:

From: Food Allergy & Anaphylaxis Network (FAAN)
To: <me>
Sent: Thursday, November 17, 2011 3:40 PM
Subject: Ask Your Senator to Support the School Access to Emergency Epinephrine Act

The Food Allergy & Anaphylaxis Network (FAAN)

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Dear Eric,The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

Today this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Adkins, Maria, and Sen. Kirk 2Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

Sincerely,
The Food Allergy & Anaphylaxis Network

 

FAAN (The Food Allergy & Anaphylaxis Network)
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Here’s that sample letter:

MODEL Letter of Support for the School Access to Emergency Epinephrine Act

Note:  Please paraphrase.  It is important that Senators do not receive duplicates of the same letter from different individuals. You can look up your local senators at www.senate.gov.

 

The Honorable (insert Senator’s name)

United States Senate

Washington, DC  20510

Dear Senator (insert name):

I am writing to ask you to co-sponsor S. 1884, the School Access to Emergency Epinephrine Act, introduced by Senators Dick Durbin and Mark Kirk. I am the parent of a child with severe food allergies.  (Personalize here by inserting a brief description of your child’s allergies.)

Children with food allergies are at risk for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. The Durbin-Kirk bill would encourage states to ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6 million American children have potentially life-threatening food allergies. Schools need to be prepared to treat allergic reactions in the event a student’s personal epinephrine auto-injector isn’t available or the student is having a reaction for the first time.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy & Anaphylaxis Network, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

I hope you will co-sponsor the Durbin-Kirk bill and work to assure passage of this legislation. Thank you for considering my views.

Sincerely,

Now, get to work!

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Epi Pen Bill! (The School Access to Emergency Epinephrine Act)

Posted on by Standard 6

I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

IMGP3289

Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

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Ridiculous Amount of Food Allergy Crap This Week

Posted on by Standard 2

This week blew up on Twitter as far as food allergies.  So much went by that I wanted to promote, comment on, blog about, or whatever… but I didn’t get to any of it.  Oh well.  There are others out there… writing, educating, & commenting.  So… if you’re interested & you can keep up, here’s a run-down of stuff that you need to see:

First off, the ridiculousness with food allergy protesters in Edgewater, FL:

And, then, all the rest…

  • NY PIX 11 | FOOD ALLERGY WEEKIt was Food Allergy Awareness Week for WPIX TV 11 in New York. Awesome.  There’s a plethora of incredible content available here: NY PIX 11 | Food Allergy Week – I still haven’t made my way through all of it.  Looks like they’re covering all the angles though… form safety at restaurants and schools, to personal profiles, to cooking, to businesses helping out with allergy needs, to dealing with it mentally, to research, to legislation.  I really applaud the drive & effort… and hope other news stations across the country pick up on this!
  • Allergic Girl: Adventures in Living Well with Food Allergies is out, & I finally got a copy.  Just started reading, and I hope to eventually blog a review.  Bonus: Author Sloane Miller got her own segment in the aforementioned WPIX Food Allergy Week!
  • I read this essay from Keith at the FAAN website, and was quite moved: FAAN Community | First Reaction in 14 Years.  Want to know what anaphylaxis feels like?  It’s worth reading, and shows the importance of vigilance in reading labels, education, carrying an epi pen, and staying calm.  Write to your state governor and the President with FAAN’s help, & ask them to support Food Allergy Awareness Week 2011!
  • Quiznos has a lobster sub?  Ugh.  Disgusting.  I still hate Lent.
  • The Allergy Ninja has arrived to give support to the #FoodAllergyMomArmy, and  I bet (& hope) he’s up to no good.

Am I missing something?  I feel like I’m missing something.

Oh yeah.  I need to update my links.  Have a blog that I should be linking to?  Let me know!

AllergyEats | Defining allergy-friendly restaurant survey results

Posted on by Standard Reply

So, a while ago I posted asking for you to help out Paul from Allergy Eats with defining “allergy-friendly” as it pertains to a restaurant.  I also took the time to post my own thoughts before I sent them on to be tabulated.

Well, now Paul has posted his summary & survey results to the still mysterious government body.  I enjoyed reading the results, so I thought I’d share:

AllergyEats | Blog Logo

AllergyEats Blog

The AllergyEats Blog | How do we define an allergy-friendly restaurant? A look at the survey results

It’s great to see the results, and I can’t wait to see where & how they’re put to use.  It’s also great that all of our comments were passed along with the report, so rest assured that your voice has been heard thanks to Paul.  Hopefully it lays groundwork for more gub’ment organizations to follow by example!  (Although, we need to push from a consumer level too.)

My take on the results… it looks like we’re all looking for everyone in the restaurant from kitchen to wait staff to managers to be trained in food allergies and cross-contamination and possibly even certified… which seems like a no-brainer.  Even if that’s all we get, it’s a great start.

Employee answering phone needs to be knowledgeable: 1

Apparently, I’m the only one who wants the person answering the phone to know what they’re talking about.  Ha ha.  I can’t tell you how many times I’ve had to define shellfish on the phone, or ask if they have any only to get there after being told no… and they totally do.  Perhaps it’s shame on me for not asking to talk to a manager…  but the person answering the phone ought to be knowledgeable enough to hand-off such questions, so I stand by my statement.

Cross contamination: (42 responses)

Understands and avoids cross-contamination:  21

Separate and cleaned prep areas and cookware:  20

Should wash hands:  1

Who said they should wash their hands?  Seriously?  I hope they’re doing that anyway… and that they don’t really need those signs in the restroom as a reminder.

Treats ALL allergies the same, not just the Big 8: 1

Apparently I’m the lone theorist there.  Really?  Well, I’m in the Top 8 category, so I guess… yo hell with the rest of you!  Ha ha.

No nuts strewn about the restaurant: 1

This one agitates me.  If it’s part of the restaurant’s shtick/ambiance/personality… then just give it up.  I like being able to walk into Five Guys and grab a tray of peanuts.  I don’t expect (or want) to dine at Long John Silvers or Red Lobster any time soon.

Specific allergen menus available in-house (not just online): 13

Allergen symbol list on menus: 12

Online food allergy menu: 4

All excellent points.  I’ve blogged about the need for menu symbols before.  Let’s get this done, people!

Ability to print out all ingredients for customer / show labels to customer if necessary: 11

Great idea.  A representative from Bob Evans once emailed me a chart detailing where everything was cooked in the kitchen & what surfaces would be safe with my shellfish allergy while they has a seasonal Shrimp stir-fry dish.  How cool is that?

At any rate, read the Blog at AllergyEats, and leave some feedback whether you participated in the original survey or not… it’s still valuable.  I’d also appreciate any comments here.  I’m sure the peanut thing will get some people riled up.  Ha ha.