Tag Archives: FAAN

It’s Food Allergy Awareness Week!

Posted on by Standard 3

It’s Food Allergy Awareness Week again, and guess what?  Food allergies and the food-allergic are still here… and we’re still allergic.  We’re still informing you about cross-contamination and safety.

A song from Kyle Dine:

Some #FAAW tweets from my #FoodAllergy tweeps:

https://twitter.com/#!/nut_freemom/status/202064341778964481

https://twitter.com/#!/chupieandjsmama/status/202036109222477827

https://twitter.com/#!/susanweissman/status/202084480452788224

https://twitter.com/#!/allergicgirl/status/202010024929800192

https://twitter.com/#!/iknowtiffany/status/202001615715176448

https://twitter.com/#!/FoodAllergyBuzz/status/201990572003704832

https://twitter.com/#!/wegohealth/status/202073874177851393

https://twitter.com/#!/AllergicVegan/status/202112986045874176

A lot of people push for government recognition or regulation.  I look for a consumer push, and recognition from the general populace.  We can all agree that we need to convey the seriousness of cross-contamination with foods… at schools, in restaurants, at home… and everywhere.

Learn more about what you can do here:  Raising Awareness, Making an Impact

Check out my Food Allergy related posts here:  Allergies

Photo of skin test about 15 minutes after the ...

Photo of skin test about 15 minutes after the application of allergens and the scratching. (Photo credit: Wikipedia)

I hope to do the Food Allergy Walk in Pittsburgh again this year.  Perhaps I can pull together a team or get even more sponsors than last year?  Your donations were incredible last year.

Also… don’t forget, Adults can have food allergies too.  We don’t “grow out” of them.  We can’t “just pick it off” or “have just a little”.  It’s a very serious thing.

So, how are you celebrating Food Allergy Awareness Week?

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The Science of Anaphylaxis / We Need Epi-Pens in Schools!

Posted on by Standard 1

Lots of food allergy stuff going on….

Food Allergy & Anaphylaxis Network

FAAN

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Separate is indeed not equal! Food allergies & bullying. |-o-|

Posted on by Standard 33

I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber

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Ask Your Senator to Support the School Access to Emergency Epinephrine Act

Posted on by Standard 4

Got this email from FAAN, thought I’d share.  This is your call to action:

From: Food Allergy & Anaphylaxis Network (FAAN)
To: <me>
Sent: Thursday, November 17, 2011 3:40 PM
Subject: Ask Your Senator to Support the School Access to Emergency Epinephrine Act

The Food Allergy & Anaphylaxis Network (FAAN)

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Dear Eric,The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

Today this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Adkins, Maria, and Sen. Kirk 2Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

Sincerely,
The Food Allergy & Anaphylaxis Network

 

FAAN (The Food Allergy & Anaphylaxis Network)
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11781 Lee Jackson Highway, Suite 160 | Fairfax, VA 22033-3309
(800) 929-4040 | faan
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Here’s that sample letter:

MODEL Letter of Support for the School Access to Emergency Epinephrine Act

Note:  Please paraphrase.  It is important that Senators do not receive duplicates of the same letter from different individuals. You can look up your local senators at www.senate.gov.

 

The Honorable (insert Senator’s name)

United States Senate

Washington, DC  20510

Dear Senator (insert name):

I am writing to ask you to co-sponsor S. 1884, the School Access to Emergency Epinephrine Act, introduced by Senators Dick Durbin and Mark Kirk. I am the parent of a child with severe food allergies.  (Personalize here by inserting a brief description of your child’s allergies.)

Children with food allergies are at risk for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. The Durbin-Kirk bill would encourage states to ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6 million American children have potentially life-threatening food allergies. Schools need to be prepared to treat allergic reactions in the event a student’s personal epinephrine auto-injector isn’t available or the student is having a reaction for the first time.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy & Anaphylaxis Network, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

I hope you will co-sponsor the Durbin-Kirk bill and work to assure passage of this legislation. Thank you for considering my views.

Sincerely,

Now, get to work!

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Epi Pen Bill! (The School Access to Emergency Epinephrine Act)

Posted on by Standard 6

I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

IMGP3289

Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

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Pittsburgh’s Food Allergy Walk 2011 Recap

Posted on by Standard 14

4th out of the 5 top individual earners!

4th out of the 5 top individual earners!

So, we had a great time on Sunday at the Pittsburgh Food Allergy Walk!  I was honored to receive a certificate for being a top individual fundraiser, and glad I could help.  I was also asked to perhaps take part in getting the word out next year, and maybe be in on some of the planning.  My online chatter was picked up by this year’s volunteer chair Uwe Winzen, as well as the founder of EpiMoms (I’m a terrible person, I forgot her name already).  How cool is that?

(I say next year, we get the 501st Legion out there!  –  Looks like they appeared at some other cities’ food allergy walks!)

Campaign Progress | Goal: $50,000.00 Achieved: $39,333.05

Campaign Progress - Goal: $50,000.00 Achieved: $39,333.05

As of right now, the site states that we raised $39,333.05 toward the $50k goal.  I head a number in the $40 range on Sunday, but perhaps they’re still tallying cash & check donations made the day of the walk.  With online & offline donations, I raised $560.55 and Bethany raised $106.85… so we raised a total of $667.40.  We quite literally could not have done it without the support of our friends & family.

I did notice that I was in the minority… all the walkers received a ribbon: Blue for people with food allergies, green for friends & family supporters.  I didn’t see too many people my age or older with blue ribbons.  It seemed to be a core of families who had small children & young teens with food allergies.

Kyle Dine

Kyle Dine

It was fun to finally meet & see a performance from Kyle Dine after talking via Twitter & Facebook.  After all, we do represent the #FoodAllergyDudeArmy.  Kyle does great work educating kids on what to do regarding not taking food from just anyone, getting an adult to read labels, and speaking out right away about reactions…  as well as letting them know they’re not alone.  I also got to personally thank local celebrity Sally Wiggin for her generous donation!  She called me a sweetheart. ❤

I have some photos up on Facebook, and hope to send them to FAAN so they can be placed in their Flickr photostream.  Hopefully others will comment on the day’s events at the Pittsburgh Food Allergy Walk Facebook Page.

Got a nice little video thank-you from FAAN too:

Smiley Cookie

Smiley Cookie

One of the coolest things I took away from the day was talking to Chef Regis Holden from Eat ‘n Park about their food allergy policies & procedures.  He told us how he worked with Bill Moore, their Director of Safety and Security, to develop practices from marking the order, to looking up all of the ingredients with possible cross-contaminants, to this awesome little purple kit with a sterile sanitary contaminant-free cutting board, knife, tongs, and other tools.  Chef Holden also spoke of yearly allergen training video refreshers, and of how he had just recently heard good things about the Eat ‘n Park on Banksville Road which is nearby.  I may just have to go see for myself, and blog about their process and my adventure!

Thanks again to everyone who gave us donations, and to the walk organizers.  I think we did some good work for FAAN!

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Thanks to everyone who donated for the Food Allergy Walk!

Posted on by Standard 5

Thanks to everyone who donated to me for the Food Allergy Walk on Sunday. The Food Allergy & Anaphylaxis Network appreciates your donation, as do I!  I have smashed my original $300 goal, and now exceeded my current $500 goal.  I couldn’t have done it without the awesome support from friends & family!

If you were thinking of donating, but hadn’t yet… I’d like to still smash that goal, or you can donate to the lovely Bethany and help her reach her goal!

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Subway still sucks, so does IHOP, take your allergy-sniffing dog there with you…

Posted on by Standard 1

Some good food allergy articles popping up lately, if you’re paying attention:

  • Allergies in the classroom: What’s OK to send in for snack time?  –  Some good tips.  Not sure if I’m 100% on-board with banning stuff in schools & classrooms.  I’d just promote safety a little more.
  • Subway expanding gluten-free test – Subway is still clueless.  They’re pushing the gluten free fad as far as they can with as little effort as possible, all while making a big deal about it & ignoring that other allergens exist.  (Read the comments.)
  • IHOP flops – IHOP owed by the same company that owns Crapplebees, also could not give a crap about your food allergies.  Try the new effortless lemon-zest dairy-free salad today! (Read the comments.)
  • $20,000 allergy-sniffing dog is a real lifesaver – Such a great idea!  Too bad it’s a $20K price tag.  I’d love to have a deathfish-detecting pooch.  I’d also train him to poop right outside of Subway restaurants.
  • Managing your food allergies in dining halls and dorm rooms – It’s back to school time.  Solid advice from a real expert.  I’m all about the buddy system.  Friends that look out for your best interest as far as not dying are friends for life.

So yeah, stuff’s happening.  I’m really just posting this to say… we’re out there.

Still taking donations for the Food Allergy Walk

Posted on by Standard 6

90% towards my goal of $500!

90% towards my goal of $500!

That’s right, Bethany & I are still taking donations for the Food Allergy Walk in  Pittsburgh.  It’s happening this Sunday, Sept. 18th at 11:00 am.  You can make a secure online tax-deductible donation for either of us, to help us meet our prospective goals, or you can hook us up with a check made out to FAAN.

Support me!
Support me!

Just click the blue “Support Me” button under each of our photos on our respective profiles to donate!

You can read my older posts about the walk for more info:

If you’re following the “Celebrity Endorsement” thing, Andrew Stockey did eventually contact me & agree to help get the word out on WTAE.com.  I still haven’t’ seen anything there yet.

Interestingly, Qdoba & Chick-fil-A also said they’d donate something, yet they haven’t online yet anyway.  I’m going to have to remind them.

You can also read all of my Food Allergy related posts if interested in learning more about food allergies form an outspoken crazy blogger.

More from the Food Allergy Walk Facebook Page…

The Walk in Pittsburgh will feature lots activities, such as: face painting, balloon artist, trackless train, mad science and inflatables. We will have a musical performance by Kyle Dine and be joined by Pittsburgh Panthers mascot ROC.

We look forward to once again welcoming Sally Wiggin and Stephen Cropper. Following the Walk, will be Q&A session with allergists from AGH and UPMC who have volunteered their time. Rep. Matt Smith will join us to share information about the new EpiPen laws in PA.

You can get one of these limited edition T-shirts for donating $50 or more, thanks to Erin “Ernie” Payne:

King Krab Orange Ernie and the Berts T-Shirt
Special Edition King Krab Orange Ernie and the Berts T-Shirt
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New AllergyEats App

Posted on by Standard 9

So, I’ve blogged about Allergy Eats many times before.  You know I think it’s an awesome resource, but can only be useful if users rate restaurants.  Now, it’s easier than ever to do… with new iPhone and Android apps!

AllergyEats Apps!

AllergyEats Apps!

AllergyEats T-shirt

AllergyEats.com

You can read the word from Allergy Eats about the release here or get the app you need here.

Paul from AllergyEats is good people, he recently donated to FAAN for my Food Allergy Walk in Pittsburgh!

I encourage you to spread the word to anyone that you know with food allergies, so we can all take advantage of the awesome ever-expanding database now available anywhere that you can get cell phone service!

http://twitter.com/#!/AllergyEats/status/108896162949496832

http://twitter.com/#!/allergicgirl/status/108895739429658624

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