Food Allergy Fun | Actual Responses – Food Allergy Fun Graph


Sad, but funny.  Food Allergy Fun‘s Tiffany is always good for a giggle.  At least I only have to worry about myself, not a little one.  I could make a similar graph of responses that I encounter when I tell other adults about my food allergy.

Actual Responses – Food Allergy Fun Graph

Actual Responses - Food Allergy Fun Graph

via Food Allergy Fun (click image to go there!)

via Food Allergy Fun: Actual Responses – Food Allergy Fun Graph.

The Science of Anaphylaxis / We Need Epi-Pens in Schools!


Lots of food allergy stuff going on….

Food Allergy & Anaphylaxis Network

FAAN

…blah blah blah Food Allergy blah blah blah blah.


Sad, but true.

blah blah blah food allergy blah blah blah blah

Image via Food Allergy Fun

I encourage you to read more at Food Allergy Fun!  Hey, we all have to maintain some sense of humor about food allergies, and when we laugh at excellent cartoons like this, we know we’re all in it together & not alone (like it feels sometimes).

Follow Tiffany on Twitter for more cartoons as they happen!  I’m (obviously) a big fan.

The Allergic Kid | No More Dead Children


You read my post about Ammaria Johnson, right?  Well, here’s another excellent blog that you need to check out on the subject:

Why?  Because it’s important to hit this message hard, and repeat it until everyone’s sick & tired of hearing it.

A small excerpt:

Failure to give Benadryl, no Epi-pen on hand and the outrageous decision to call a parent instead of 911 when a child’s airway is closing?  I don’t even have words for this school’s heinous behavior.  What part of “life threatening medical condition” did they not understand?  These people shouldn’t be entrusted with the care of a gerbil, let alone a child’s life.

And what kind of self-serving, we’re-not-responsible-for-the-death-of-the-child-in-our-care, preparing-for-a-lawsuit garbage was the school district trying to serve up with its statement that this girl died of a “pre-existing medical condition”?  Here’s the county’s own guidelines for managing food allergies which the school failed to follow.  (Thanks to @IknowTiffany for the link.)

Couldn’t agree more.

Another Food Allergy Tragedy: Ammaria Johnson


There are many posts out there already in the Food Allergy community about a tragedy involving a peanut allergy that happened only yesterday in Richmond Virginia.  I won’t rehash the details, but I would like to provide some links to articles that are worth reading:

I felt the need to post because we obviously need to reach beyond the Food Allergy community.  If you’re reading this, I ask you to reblog, repost, tweet, +1, post your thoughts about the situation, repost one or all of the above articles, tell your friends and neighbors… use social media and good old fashioned word of mouth to spread the word.

This issue is bigger than the bullying, bigger than the politics, bigger than “my kid needs his peanut butter sandwich”.

SCHOOLS NEED TO HAVE EPI-PENS ON SITE, AND NURSES, TEACHERS, STAFF MUST BE PERMITTED TO ADMINISTER THEM.

There is no longer an excuse for anything getting in the way of this.  This is not a single isolated incident kind of thing any longer.

From WTVR:

“She has an allergy action plan at the school,” said Pendleton, which authorizes the school to give her Benadryl during a reaction. “They didn’t do that,” she said.

At the beginning of this school year, the mother said she tried to give the clinical aid an Epipen for emergencies, but she was declined and told to keep it at home.

According to Chesterfield County School policy parents are supposed to provide the school medication for children with allergies.

This is unacceptable.

Write to your senator now.  Write all of your elected officials frequently.  Ask them to endorse a bill like this, or any bill that comes up on the issue.

Administering a dose of epinephrine is not a 100% guaranteed life-saver, but imagine if lifeguards in school pools were asked not to administer CPR for drowning children?  We sure as hell need to do something.

If it’s your thing, please pray for the family, the teachers, students, emergency responders, and medical staff involved.

What are you waiting for?  Read those articles, & re-post now!

EpiPens are portable epinephrine-dispensing de...

Epi-Pen

Separate is indeed not equal! Food allergies & bullying. |-o-|


I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber

Ask Your Senator to Support the School Access to Emergency Epinephrine Act


Got this email from FAAN, thought I’d share.  This is your call to action:

From: Food Allergy & Anaphylaxis Network (FAAN)
To: <me>
Sent: Thursday, November 17, 2011 3:40 PM
Subject: Ask Your Senator to Support the School Access to Emergency Epinephrine Act

The Food Allergy & Anaphylaxis Network (FAAN)

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Dear Eric,The Food Allergy & Anaphylaxis Network (FAAN™) has been working with U.S. Senators Dick Durbin (D-IL) and Mark Kirk (R-IL) on federal legislation that would encourage states to adopt laws requiring schools to have on hand “stock” epinephrine auto-injectors – meaning epinephrine that is not prescribed specifically to a single student but can be used for any student and staff member in an anaphylactic emergency.

Today this bill (S. 1884), the School Access to Emergency Epinephrine Act, was introduced in the Senate.

Adkins, Maria, and Sen. Kirk 2Sen. Kirk with Brianna and Rhonda Adkins, and FAAN CEO Maria Acebal on Capitol Hill Tuesday, Nov. 15.

Earlier this week, FAAN CEO Maria L. Acebal, joined by Rhonda Adkins, wife of country music superstar and Celebrity Ambassador Who Cares Trace Adkins, and Adkins’s young daughter Brianna, visited lawmakers on Capitol Hill to urge them to support this lifesaving legislation.

Now we need your help to get your senators’ support! Please download our sample letter of support, personalize it, and send it to their senators.

You can look up your local senators at www.senate.gov.

In addition to protecting those whose epinephrine auto-injector isn’t immediately accessible during a reaction, this legislation will help save the lives of those who experience an anaphylactic reaction and don’t have a prescribed epinephrine auto-injector. Data shows that up to 25% of all epinephrine administrations that occur in the school setting involve students and adult staffers whose allergy was unknown at the time of the event.

Only a handful of states have laws related to stock epinephrine. S. 1884, however, will provide an incentive for states to enact their own laws allowing school personnel to keep and administer a non-student specific epinephrine auto-injector in case of an emergency. (The state laws would be similar to the ones enacted in Illinois and Georgia in 2011.)

Thank you for your help gathering support for S. 1884. We will keep you posted as FAAN continues to work to secure passage of this important legislation. Together, we can save the lives of those with potentially life-threatening food allergies.

Sincerely,
The Food Allergy & Anaphylaxis Network

 


FAAN (The Food Allergy & Anaphylaxis Network)

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Here’s that sample letter:

MODEL Letter of Support for the School Access to Emergency Epinephrine Act

Note:  Please paraphrase.  It is important that Senators do not receive duplicates of the same letter from different individuals. You can look up your local senators at www.senate.gov.

 

The Honorable (insert Senator’s name)

United States Senate

Washington, DC  20510

Dear Senator (insert name):

I am writing to ask you to co-sponsor S. 1884, the School Access to Emergency Epinephrine Act, introduced by Senators Dick Durbin and Mark Kirk. I am the parent of a child with severe food allergies.  (Personalize here by inserting a brief description of your child’s allergies.)

Children with food allergies are at risk for anaphylaxis, a serious allergic reaction that is rapid in onset and may cause death. To prevent death, anaphylaxis must be treated promptly with an injection of epinephrine. The Durbin-Kirk bill would encourage states to ensure that epinephrine is available in schools and that school personnel are trained to administer it in an emergency. Epinephrine is safe and easy to administer. Children are able to self-administer the medication, and any adult working in a school would be capable of learning how to administer epinephrine in a matter of minutes.

Nearly 6 million American children have potentially life-threatening food allergies. Schools need to be prepared to treat allergic reactions in the event a student’s personal epinephrine auto-injector isn’t available or the student is having a reaction for the first time.

The School Access to Emergency Epinephrine Act is not a controversial bill. It is endorsed by the Food Allergy & Anaphylaxis Network, the American Academy of Allergy, Asthma & Immunology, the American Academy of Pediatrics, and the National Association of School Nurses. On average it will cost a school just over $100 to have epinephrine available to prevent a fatality from anaphylaxis. This is a small price to pay to save the life of a child.

I hope you will co-sponsor the Durbin-Kirk bill and work to assure passage of this legislation. Thank you for considering my views.

Sincerely,

Now, get to work!

Voices Against Brain Cancer


Voices Against Brain Cancer

Voices Against Brain Cancer

Jesse Laz from the band Locksley is participating in a walk to fight Brain Cancer.  I think it should be obvious to Ernie and the Berts friends & fans that it’s an issue close to our hearts.  I urge you to support Jesse for this walk.  Do it for Jesse’s friends and family, and do it for our friend & fearless leader, Erin “Ernie” Payne.

Erin was the only person more vocal than me when I was raising money for the food allergy walk, & even put his money where is mouth was, as well as providing special edition T-shirts.

Jesse is trying to reach $17,000 in 17 days.  It’s a lofty goal, and every donation counts.  He’ll press a special vinyl if & only if the goal is met.  So please, donate if you can, or at least share the link like mad.

Epi Pen Bill! (The School Access to Emergency Epinephrine Act)


I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

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Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

Possible Parasitic Panacea


Adult Trichuris female human whipworm PHIL 414...

Adult Trichuris female human whipworm

Thanks to one of my many Twitter food allergy friends,  @Onespot_Allergy, this incredible  yet possibly repulsing story recently came to my attention: Food Allergies And The Dirty Side Of The Hygiene Hypothesis

Basically… researchers are trying to see if parasites dropped into your guts will boost your immune system and possibly cure peanut allergies… and in turn, all food allergies.

This linked to another exciting, informative, and insane article from WCVB TV-5 complete with a video: Parasites May Cure Allergies

…Participants would swallow a small vial full of liquid with parasitic eggs once every two weeks for an undetermined period of time.

They said side effects are minimal.

“This is not a parasite that will stay and colonize,” said Castells. “They just stay there for a little bit, they have enough food for a few days, a few weeks, and they go out.”

Jouvin and Castells are particularly interested in finding study subjects with moderately serious peanut allergies. Often deadly, peanut allergies afflict millions and kill as many as 100 Americans each year.

First reaction?  Ew!  Next reaction?  Neat!  …and what the hell is a Whipworm?  Well, Wikipedia is helpful in such situations…

  • Light infestations (<100 worms) are frequently asymptomatic.
  • Heavy infestations may have bloody diarrhea.
  • Long-standing blood loss may lead to iron-deficiency anemia.
  • Rectal prolapse is possible in severe cases.
  • Vitamin A deficiency may also result due to infection.[2]

Mechanical damage to the mucosa may occur as well as toxic or inflammatory damage to the intestines of the host.

At least the first line is reassuring.  This seems a lot like how the plot to Alien started.  If it’s proven, I’ll go for it.  I’d like to make sure that I’m not allergic to Whipworms before I eat any or their eggs, though.

Also… if “cured”, I wouldn’t be going to Red Lobster any time soon, but it sure would make cross-contamination fears a thing of the past.

What do you think about this possible cure for food allergies?  Excited?  Scared?  Grossed out?  Curious?  No emotions until there are solid results?