The Allergic Kid | No More Dead Children


You read my post about Ammaria Johnson, right?  Well, here’s another excellent blog that you need to check out on the subject:

Why?  Because it’s important to hit this message hard, and repeat it until everyone’s sick & tired of hearing it.

A small excerpt:

Failure to give Benadryl, no Epi-pen on hand and the outrageous decision to call a parent instead of 911 when a child’s airway is closing?  I don’t even have words for this school’s heinous behavior.  What part of “life threatening medical condition” did they not understand?  These people shouldn’t be entrusted with the care of a gerbil, let alone a child’s life.

And what kind of self-serving, we’re-not-responsible-for-the-death-of-the-child-in-our-care, preparing-for-a-lawsuit garbage was the school district trying to serve up with its statement that this girl died of a “pre-existing medical condition”?  Here’s the county’s own guidelines for managing food allergies which the school failed to follow.  (Thanks to @IknowTiffany for the link.)

Couldn’t agree more.

Another Food Allergy Tragedy: Ammaria Johnson


There are many posts out there already in the Food Allergy community about a tragedy involving a peanut allergy that happened only yesterday in Richmond Virginia.  I won’t rehash the details, but I would like to provide some links to articles that are worth reading:

I felt the need to post because we obviously need to reach beyond the Food Allergy community.  If you’re reading this, I ask you to reblog, repost, tweet, +1, post your thoughts about the situation, repost one or all of the above articles, tell your friends and neighbors… use social media and good old fashioned word of mouth to spread the word.

This issue is bigger than the bullying, bigger than the politics, bigger than “my kid needs his peanut butter sandwich”.

SCHOOLS NEED TO HAVE EPI-PENS ON SITE, AND NURSES, TEACHERS, STAFF MUST BE PERMITTED TO ADMINISTER THEM.

There is no longer an excuse for anything getting in the way of this.  This is not a single isolated incident kind of thing any longer.

From WTVR:

“She has an allergy action plan at the school,” said Pendleton, which authorizes the school to give her Benadryl during a reaction. “They didn’t do that,” she said.

At the beginning of this school year, the mother said she tried to give the clinical aid an Epipen for emergencies, but she was declined and told to keep it at home.

According to Chesterfield County School policy parents are supposed to provide the school medication for children with allergies.

This is unacceptable.

Write to your senator now.  Write all of your elected officials frequently.  Ask them to endorse a bill like this, or any bill that comes up on the issue.

Administering a dose of epinephrine is not a 100% guaranteed life-saver, but imagine if lifeguards in school pools were asked not to administer CPR for drowning children?  We sure as hell need to do something.

If it’s your thing, please pray for the family, the teachers, students, emergency responders, and medical staff involved.

What are you waiting for?  Read those articles, & re-post now!

EpiPens are portable epinephrine-dispensing de...

Epi-Pen

Voices Against Brain Cancer


Voices Against Brain Cancer

Voices Against Brain Cancer

Jesse Laz from the band Locksley is participating in a walk to fight Brain Cancer.  I think it should be obvious to Ernie and the Berts friends & fans that it’s an issue close to our hearts.  I urge you to support Jesse for this walk.  Do it for Jesse’s friends and family, and do it for our friend & fearless leader, Erin “Ernie” Payne.

Erin was the only person more vocal than me when I was raising money for the food allergy walk, & even put his money where is mouth was, as well as providing special edition T-shirts.

Jesse is trying to reach $17,000 in 17 days.  It’s a lofty goal, and every donation counts.  He’ll press a special vinyl if & only if the goal is met.  So please, donate if you can, or at least share the link like mad.

Epi Pen Bill! (The School Access to Emergency Epinephrine Act)


I haven’t written about food allergies in a while.  I would think that Epi-Man would be pleased with this post.  Check out this article about legislation being brought forth to give easier access to epinephrine auto-injectors and their administration by school staff.

EpiPens are portable epinephrine-dispensing de...

Image via Wikipedia

Read all about the The School Access to Emergency Epinephrine Act at the FAAN website.

IMGP3289

Image by raindrift via Flickr

I’m not big on the gub’ment micro-managing… but how can I not get behind this?  I’d like to see something like this eventually passed for restaurants too.  Why not have one more step in keeping kids & adults safe?

Yes, the act is aimed at kids with food allergies… but us adults are out there too.  What if a teacher, administrator, janitor, nurse, or anyone else on site has a life-threatening food allergy?  This kind of thing could come in handy for all of us out there.

Keep watching the news, I hope this gets passed soon and without any political shenanigans.

Epi-men!

Epi-men!

Cancer Benefit Show


Cancer

Image by GDS Infographics via Flickr

Borrowed this from the Ernie and the Berts blog…

⚕☣☤☣⚕ Attention Kids Under 21 and People Who Hate Cancer:

We have a show coming up that you ought to make an extra effort to attend.  We don’t do many all ages gigs, so this may be your only chance for a while.

This formerly had a slightly more impolite name, but it has been toned down a little bit:  P!$$ ON CANCER: A Musical Collaboration to fight for a friend’s life!

A friend of Bert’s has set up the show, and it looks to be (the good kind of) chaos.  Disgust in Disguise are a bunch of cool cats and it looks like there’s a really diverse set of musical genres happening, as well as a silent auction and some food & drink specials.

We’re asking you to come out, support a good cause, listen to some music, eat, drink, & be merry.  Please don’t literally pee on anything or anyone.  (This means you, Brad.)

Here are the details in case you missed ‘em!

When your body is your enemy, how would you choose to fight?

Join us as we take a stand against a friend’s cancer.
Help us fight his silent war.
March with us, beside him, as we tell his cancer to F@#! off!
He’s ours. We’re not done with him, yet!

The Bands:

  • 12:00 AM | Voices and Vessels | FB / RN / My_ / @t | (Metal / Post-Hardcore)
  • 11:00 PM | Disgust in Disguise | FB / RN / My_ / @t | (Metal / Hardcore / Punkrock)
  • 10:00 PM | Ernie and the Berts | FB / RN / My_ / @t | (Rock / Pop / Punk)
  • 09:00 PM | Lyndsey Smith | FB / RN / My_ / @t | (R&B/Soul / Funk / Pop)
  • 08:00 PM | Midnight Rose | FB / RN / My_/ @t | (???)
  • 07:00 PM | The Ele[mental] | FB / RN / My_ / @t | (Rock / Alternative / Indie Rock)
  • 06:00 PM | The Long Knives | FB / RN / My_ / @t | (Indie / Psychiatric / Distofuzzadelic)

The Place:

The Details:

If anyone has any more details, links that I missed, or a flyer, please let us know in the comments!

Possible Parasitic Panacea


Adult Trichuris female human whipworm PHIL 414...

Adult Trichuris female human whipworm

Thanks to one of my many Twitter food allergy friends,  @Onespot_Allergy, this incredible  yet possibly repulsing story recently came to my attention: Food Allergies And The Dirty Side Of The Hygiene Hypothesis

Basically… researchers are trying to see if parasites dropped into your guts will boost your immune system and possibly cure peanut allergies… and in turn, all food allergies.

This linked to another exciting, informative, and insane article from WCVB TV-5 complete with a video: Parasites May Cure Allergies

…Participants would swallow a small vial full of liquid with parasitic eggs once every two weeks for an undetermined period of time.

They said side effects are minimal.

“This is not a parasite that will stay and colonize,” said Castells. “They just stay there for a little bit, they have enough food for a few days, a few weeks, and they go out.”

Jouvin and Castells are particularly interested in finding study subjects with moderately serious peanut allergies. Often deadly, peanut allergies afflict millions and kill as many as 100 Americans each year.

First reaction?  Ew!  Next reaction?  Neat!  …and what the hell is a Whipworm?  Well, Wikipedia is helpful in such situations…

  • Light infestations (<100 worms) are frequently asymptomatic.
  • Heavy infestations may have bloody diarrhea.
  • Long-standing blood loss may lead to iron-deficiency anemia.
  • Rectal prolapse is possible in severe cases.
  • Vitamin A deficiency may also result due to infection.[2]

Mechanical damage to the mucosa may occur as well as toxic or inflammatory damage to the intestines of the host.

At least the first line is reassuring.  This seems a lot like how the plot to Alien started.  If it’s proven, I’ll go for it.  I’d like to make sure that I’m not allergic to Whipworms before I eat any or their eggs, though.

Also… if “cured”, I wouldn’t be going to Red Lobster any time soon, but it sure would make cross-contamination fears a thing of the past.

What do you think about this possible cure for food allergies?  Excited?  Scared?  Grossed out?  Curious?  No emotions until there are solid results?

Still taking donations for the Food Allergy Walk


90% towards my goal of $500!

90% towards my goal of $500!

That’s right, Bethany & I are still taking donations for the Food Allergy Walk in  Pittsburgh.  It’s happening this Sunday, Sept. 18th at 11:00 am.  You can make a secure online tax-deductible donation for either of us, to help us meet our prospective goals, or you can hook us up with a check made out to FAAN.

Support me!
Support me!

Just click the blue “Support Me” button under each of our photos on our respective profiles to donate!

You can read my older posts about the walk for more info:

If you’re following the “Celebrity Endorsement” thing, Andrew Stockey did eventually contact me & agree to help get the word out on WTAE.com.  I still haven’t’ seen anything there yet.

Interestingly, Qdoba & Chick-fil-A also said they’d donate something, yet they haven’t online yet anyway.  I’m going to have to remind them.

You can also read all of my Food Allergy related posts if interested in learning more about food allergies form an outspoken crazy blogger.

More from the Food Allergy Walk Facebook Page

The Walk in Pittsburgh will feature lots activities, such as: face painting, balloon artist, trackless train, mad science and inflatables. We will have a musical performance by Kyle Dine and be joined by Pittsburgh Panthers mascot ROC.

We look forward to once again welcoming Sally Wiggin and Stephen Cropper. Following the Walk, will be Q&A session with allergists from AGH and UPMC who have volunteered their time. Rep. Matt Smith will join us to share information about the new EpiPen laws in PA.

You can get one of these limited edition T-shirts for donating $50 or more, thanks to Erin “Ernie” Payne:

King Krab Orange Ernie and the Berts T-Shirt
Special Edition King Krab Orange Ernie and the Berts T-Shirt

Celebrity Endorsement?


Sally Wiggin ❹

Sally Wiggin ❹

None can argue with the awesomeness of local celebrity, WATE-TV‘s own Sally Wiggin.  If you do argue, I’ll fight you.  Sally is awesome, in fact… she’s so awesome, that her hair has it’s own Twitter account.  You can find Sally on Wikipedia, Twitter, & Facebook (a few times)(There’s even a page called “Sally Wiggin Out” on Facebook.)  She’s a phenomenon.

Since Andrew Stockey is on Facebook all the time (he’s on Twitter too) , I was feeling goofy & decided to try & goad him into making a donation to the Pittsburgh Food Allergy Walk by invoking the name Sally Wiggin, as she’s the “Local Honorary Media Chair”…

Not gonna let Sally Wiggin get all attention for the Food Allergy Walk, are you? Care to make a donation...?

Not gonna let Sally Wiggin get all attention...

Somehow, Sally must have interpreted this as me asking her personally for a donation, as this appeared on my wall a few days later…

I did as you asked. Can't wait to meet you and Bethany at the walk.

I did as you asked. Can't wait to meet you and Bethany at the walk.

And she did!  You can see that Sarah Wiggin has generally made a contribution to my food allergy walk donation page: http://wwwofoodallergywalk.org/aixelsyd13

(This also humorously qualifies her for a limited run “king krab orange” T-shirt from Ernie of Ernie and the Berts – planning on giving her one at the walk, wonder if she’ll wear it?)

I’m not far from getting my name in the “top fundraisers” list on the Pittsburgh walk page.  Those people are still getting donations too… so keep ’em coming!

This post is to celebrate the generosity of Sally Wiggin, and to try and get other local celebrities and organizations to step up & donate… for a chance to be awesome like Sally.  (I have also received some initial contact from Chick-fil-A, Qdoba, & Giant Eagle… though no donations as of yet.)

You can also donate to my wife, Bethany… she’s not quite as “aggressive” as I am in collecting donations.  You can listen to this while you dig out your credit card…

OK, sponsor me or Bethany for the 2011 Food Allergy Walk in Pittsburgh!


Sorry if I seem like that guy next to a dumpster outside of a funeral home trying to sell you dead flowers so I can raise “bus fair” lately.

That said, this is a cause that’s obviously near & dear to me… so I’d really like to make a big impact.  I’m already a great deal of the way closer to reaching my “goal” of $300, but I’d prefer to exceed that goal for my first Food Allergy Walk if at all possible.  I just left the default goal of $300 as I was setting up the page at FoodAllergyWalk.org, and thought it would be a good start.  I had no idea that donations would come in so quickly!  I think I can do a lot more than $300, with the help of my friends & family.

As of this posting:

  • The national goal is $3,000,000.00, and the amount raised so far is $822,567.86 with 4 of 43 walks completed overall.
  • The goal for the Pittsburgh walk is $50,000.00 and they’re currently at $29,150.45.

Keep ’em coming, and pass along the link if so inclined!  That’s:

Donate to Eric for the 2011 FAAN Walk!

Donate to Eric for the 2011 FAAN Walk!

If you’d like to donate to my lovely wife instead of me, you can do that too:

Donate to Bethany for the 2011 FAAN Walk!

Donate to Bethany for the 2011 FAAN Walk!

She has to deal with this food allergy crap as much as I do, and she has to put up with my insane ramblings about food allergies & food service in real life, then hear “Yeah, didn’t you read my blog post about that?” from me repeatedly.  She reads labels, asks questions, makes phone calls and even taste-tests for me.  Perhaps she deserves your donations more than I do!

You can follow the links to either of our names do donate right through a secure connection through the Food Allergy Walk website.  I have found out that since my last post about this, the minimum donation online is $10.  I’ll take any amount in person.  $5 or $1 is still a donation.  I’ll have an envelope for cash & checks (made payable to FAAN).

I’ll hit you with some FAAN Facts

  • As many as 15 million Americans have food allergies, including approximately 6 million children.
  • The CDC reported that food allergies result in over 300,000 ambulatory-care visits a year among children.
  • Eight foods account for 90% of all food-allergic reactions in the U.S.: milk, eggs, peanuts, tree nuts (e.g., walnuts, almonds, cashews, pistachios, pecans), wheat, soy, fish, and shellfish.
  • There is no cure for food allergies. Strict avoidance of food allergens and early recognition and management of allergic reactions to food are important measures to prevent serious health consequences.
  • Even trace amounts of a food allergen can cause a reaction.
  • Most people who’ve had an allergic reaction to something they ate thought that it was safe.

I’m all about raising awareness of the seriousness of food allergies.  It’s hard to impress the severity upon some people, especially those in the food service industry.  Money raised will go to research and education.  In fact, here’s how your donations will be used:

How FAAN Uses Your Contributions
FAAN uses contributions to fund its education, advocacy, research, and awareness efforts. Eighty-one cents of every dollar is spent on innovative research and programs that help give families struggling with food allergies a fighting chance. Since 2004, FAAN has funded more than $4.6 million in research. Education remains the single most important component of staying safe while living with food allergies. Since 2006, FAAN has funded nearly $175,000 in Community Outreach Grants to local support groups throughout the country.

Again, I thank you for your tolerance.  I’d like to develop one to shellfish, but I don’t see it happening without your help!

Oh yeah, Ernie of Ernie and the Berts is willing to give a free special-run king krab orange T-shirt to anyone who donates over $50 & wants one.  Click here for how to claim yours!

Cleanliness and awesomeness at Market District in Robinson


Giant Eagle Market District Restaurant on UrbanspoonI’ve written about the Market District restaurant before (& specifically about the allergen signage), and have even posted a review & photos on Urbanspoon.  I probably will again.

I feel the need to write once more to applaud their cleanliness & friendliness at the BBQ station (OK, the Smoke & Fire Rotisserie).  Bethany & I were there for dinner & grocery shopping last night on a trip to get a bunch of stuff and take advantage of the dastardly cult-like fuelperks!®/foodperks!™ programs.  (Don’t tell anyone, but Tuesday night is a great night to go shopping there.)

PRETTY PLEASE! (with a cherry on top) USE MAIN ENTRANCE ←with a cart― NOT THE ROTATING DOOR
sign for the special sort of Yinzer…

I noticed a few things.  First, I noticed a sign above the soups that said that seafood soups would be available in the seafood section.  I wish I had snapped a photo.  It may not have anything to do with allergies & potential cross-contamination, but I like it.  Keep the deadly seabugs in their own little corner.

Next and more importantly, I noticed the employee that handled my order.  She told me that she’d be with me as soon as possible while she handled the order for the people in front of me.  I had no problem waiting, but the acknowledgement of my presence was a great start.  You can’t imagine how many people behind a food counter will just ignore you, and how such a simple thing as a hello makes all the difference.

The big surprise came after I ordered my turkey sandwich with St. Loius style sauce & grilled vegetables (which are so incredibly awesome).  I watched my new favorite employee take the carving knife carving, wash it in the sink, then come back to spray/wash/wipe the cutting board, then proceed to carve the delicious turkey for my simple yet tasty sandwich.

(You mean, there are steps beyond wiping a knife with a dirty rag?  Yes, I’m talking to you, Subway.)

Such simple steps, such a comfort for someone with food allergies.  I know I go to the Rotisserie station because it’s deathfish free, but hopefully this is an insight to Market District‘s overall food prep/handling policies.  If not put in place by training, I applaud this team member’s personal dedication to cleanliness!  I wonder if they’ve looked at FAAN’s guide to welcoming guests with food allergies?  I was already a fan of the place because of other chefs there that I had talked to regarding food allergies, and this just put it over the top.

I hope to write to Market District to express my awe & thanks.  If only they would do a few more simple things, they would indeed be the most awesome grocery store ever:

Turner's Tea-Bird
Turner’s Tea-Bird