Tag Archives: The Food Allergy & Anaphylaxis Network

Separate is indeed not equal! Food allergies & bullying. |-o-|

Posted on by Standard 33

I haven’t blogged about food allergies lately, so it’s time.  Luckily the other day, a great post popped up in Google Reader, with a striking headline:  We Have Come Too Far To Forget, Separate Is Not Equal

I happen to consider the author Thanita a Twitter friend, and a proud member of the #FoodAllergyMomArmy.  It’s got a great message.  Obviously the first thing it brings to mind is racism, but it can now be applied to any group facing discrimination.

As I’ve said before… I’d like to see any changes brought forth from a consumer side of view, not a legislative one.  When we’re dealing with schools, parents really need to get involved and not just the parents of the food-allergic children.  Legislation in this area may be the best answer as far as schools are concerned.  After all, it’s a gub’ment institution, right?  (Things like the School Access to Emergency Epinephrine Act are extremely important to protect food-allergic kids, as well as any that may have reactions to thinks like latex or bee stings.  Pennsylvania now seems like it’s on top of things.)

All in all, some earnest thinking about the whole thing will bring forth a hopefully easy decision:

When other parents tell the family of the anaphylactic child to just “home-school, it’s safer, we’re looking out for your best interest”, it’s a joke. Separate Is Not Equal.

When a child is forced to peer over a sea of smiling, laughing, socializing children, all the while sitting on a separate table alone, “for his/her safety”, it’s Separate and Not Equal.

We have to ask ourselves, how far have WE come since the 1950’s? Would we be doing this to a child with autism? To a child in a wheelchair? To a child with dark skin? If the answer is never, then do not do it to a child with an anaphylactic disability.

Think about that.  There’s a lot of buzz about bullying lately, & it certainly falls on food-allergic kids.  For an example, read this awesome article by another #FoodAllergyMomArmy member and cool Twitter friend Libby about bullying: Bullies, Food Allergies and The Force

This is heavy:

By the way, just one mistake can be fatal. Have I mentioned the shocking levels of stress in parents of children with food allergies?

So this morning I dressed my son in one of his Star Wars t-shirts and talked to him about Katie and how it’s ok to be different and not ok to tease or bully someone else. I packed an allergen free lunch, gave him hugs and kisses, told him I loved him and sent him off to school with a prayer that he would come home safely, something I never take for granted.

To the kids with food allergies and their parents, may the force be with you. You’re going to need it.

One mistake can be fatal.  Let’s all help make sure it doesn’t come to that.  These food allergy moms & dads (& brothers & sisters, etc.) are badass, I tell you.  It takes courage to muster up the confidence to put together a safe plan for your kid(s), and to be strong for them when you probably just want to break down & cry about it yourself sometimes.

Food Allergy & Anaphylaxis Network

Prevent Bullying

It’s up to all of you reading to inform schools, restaurants, and everyone that you’re not going to exclude yourself or your kids from society or live in fear from your food allergy.  It’s up to you to be ever-vigilant and cautious, but it’s all so up to you to not back down or let your kids be ostracized for being different.

Now, where can I get an Epi-pen case that looks like a lightsaber?

Lightsaber

Related articles

Pittsburgh’s Food Allergy Walk 2011 Recap

Posted on by Standard 14

4th out of the 5 top individual earners!

4th out of the 5 top individual earners!

So, we had a great time on Sunday at the Pittsburgh Food Allergy Walk!  I was honored to receive a certificate for being a top individual fundraiser, and glad I could help.  I was also asked to perhaps take part in getting the word out next year, and maybe be in on some of the planning.  My online chatter was picked up by this year’s volunteer chair Uwe Winzen, as well as the founder of EpiMoms (I’m a terrible person, I forgot her name already).  How cool is that?

(I say next year, we get the 501st Legion out there!  –  Looks like they appeared at some other cities’ food allergy walks!)

Campaign Progress | Goal: $50,000.00 Achieved: $39,333.05

Campaign Progress - Goal: $50,000.00 Achieved: $39,333.05

As of right now, the site states that we raised $39,333.05 toward the $50k goal.  I head a number in the $40 range on Sunday, but perhaps they’re still tallying cash & check donations made the day of the walk.  With online & offline donations, I raised $560.55 and Bethany raised $106.85… so we raised a total of $667.40.  We quite literally could not have done it without the support of our friends & family.

I did notice that I was in the minority… all the walkers received a ribbon: Blue for people with food allergies, green for friends & family supporters.  I didn’t see too many people my age or older with blue ribbons.  It seemed to be a core of families who had small children & young teens with food allergies.

Kyle Dine

Kyle Dine

It was fun to finally meet & see a performance from Kyle Dine after talking via Twitter & Facebook.  After all, we do represent the #FoodAllergyDudeArmy.  Kyle does great work educating kids on what to do regarding not taking food from just anyone, getting an adult to read labels, and speaking out right away about reactions…  as well as letting them know they’re not alone.  I also got to personally thank local celebrity Sally Wiggin for her generous donation!  She called me a sweetheart. ❤

I have some photos up on Facebook, and hope to send them to FAAN so they can be placed in their Flickr photostream.  Hopefully others will comment on the day’s events at the Pittsburgh Food Allergy Walk Facebook Page.

Got a nice little video thank-you from FAAN too:

Smiley Cookie

Smiley Cookie

One of the coolest things I took away from the day was talking to Chef Regis Holden from Eat ‘n Park about their food allergy policies & procedures.  He told us how he worked with Bill Moore, their Director of Safety and Security, to develop practices from marking the order, to looking up all of the ingredients with possible cross-contaminants, to this awesome little purple kit with a sterile sanitary contaminant-free cutting board, knife, tongs, and other tools.  Chef Holden also spoke of yearly allergen training video refreshers, and of how he had just recently heard good things about the Eat ‘n Park on Banksville Road which is nearby.  I may just have to go see for myself, and blog about their process and my adventure!

Thanks again to everyone who gave us donations, and to the walk organizers.  I think we did some good work for FAAN!

Related articles